CysticLife CF Community Partners with Mayo Clinic to Conduct World’s Largest CF Exercise Study

CysticLife.org, the largest patient-led social network for the cystic fibrosis (CF) community with more than 8,600 members, has partnered with researchers at the Mayo Clinic to conduct what it says will be the world’s largest CF exercise study. A report by rare disease information…

‘Salty Kids’ to Capture Challenges of Children and Families Living with Cystic Fibrosis

Ian Ross Pettigrew, the Hamilton, Ontario-based photographer and the creator of the Salty Girls photo project and book of the same name, is carrying on with the next stage of his project: capturing images of people living with cystic fibrosis (CF). Salty Kids will containing a gallery of images of children with…

Edinburgh Drama Troupe Crowdfunding For Cystic Fibrosis Performance

Creative Electric (CE), a performance company in Scotland, is launching a fundraising effort to support a new project, a theatrical performance entitled, “HEY, I’M ALIVE!” that gives voice to a character who suffers from Cystic Fibrosis, according to a recent post on the North Edinburgh News (NEN) website.