Adults and children with cystic fibrosis (CF) experienced a marked increase in food insecurity — meaning a limited or uncertain availability of foods that are nutritionally adequate and safe  — during the COVID-19 pandemic, a U.S. study found. Patients with food insecurity also reported poorer mental health and self-care…

I recently got together with a group of friends, and in the middle of our conversation, one confided that she was excited to start therapy soon. Everyone joined in the excitement and congratulated her. Those also in counseling, which turned out to be most of the group, discussed their thoughts…

At the start of each new year, I try not to have regrets from the previous year, especially as related to my cystic fibrosis. “Forget about that handful of medication you missed,” I’ll tell myself. Or, “So what if you didn’t stick to your diet!” Then, I’ll watch an old…

Clinic anxiety is real, especially if you’re frequented by bad news. When I was little, I never wanted to go to the doctor. “Clinic” meant hearing speeches that felt disciplinary in nature, adding medications to my regimen, or being threatened with a lengthy hospital stay. Needless to say, I…

Earn your rest. Earn self-care. Earn taking care of yourself. The list is endless for the unrealistic standards forced on us by society. The United States is driven by an obsession with productivity levels. Taking days off is portrayed as weak, a lack of trying, and laziness. Where is the…

My head is in the clouds right now. I took a heavy sleeping aid about half an hour ago, and wooh, that stuff hits fast and hard. The sleeping aid has become necessary some nights. I don’t know how to sleep when my phone keeps buzzing, buzzing, buzzing. I pick…

Worrying is one of my most exceptional talents, as illustrated last week when preparing to travel to New York City. I strongly connect with the phrase “dress rehearsing tragedy.” If life starts to stabilize, I worry about the other shoe readying to drop.

Many young professionals burn the candle at both ends, especially when the temptation to fit into a big city’s lifestyle lurks. Somehow, they continue to function as productive humans — for the most part. But a person with cystic fibrosis (CF) and those in their…

Last in a series. Read part one and part two. The poster sessions at the North American Cystic Fibrosis Conference (NACFC) in Denver last month included many interesting branches of the wonderful world of CF research. In this column, I’ll finish with a series of short overviews of interesting…

For many of us, being a part of the cystic fibrosis community is obligatory. No matter our degree of engagement, we have CF and therefore are part of a community larger than we are. Choosing to play a part in the community can be one of the most…