In this video, travel along with cystic fibrosis patient Beau Rich on his amazing 2014 hiking, driving, skateboarding and swimming journey across the United States while maintaining CF care with new mobile medical devices. As seen in the video, one of the devices is an …
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Cystic Fibrosis News Today: A Look Back at 2017
With the holiday season in full swing, it’s the perfect opportunity to take a look back at 2017. It’s been a year full of ups and downs, and while there were definitely quite a few low moments, there were certainly quite a few highs. To celebrate the year that was,…
7 Tips for Preventing Reflux and Aspiration
Dr. Gwen A. Huitt, an infectious disease doctor with a special interest in mycobacteria and cystic fibrosis, spoke in our last article about what aspiration is and how it’s dangerous to CF patients. “Aspiration is defined as any liquid, substance, or foreign body that gains access (below the vocal cords)…
It’s interesting to see characters with cystic fibrosis in popular media — even if the disease isn’t always portrayed realistically. Check out these films, shows, and books where cystic fibrosis appears, and how the disease is depicted in each one: Foreverland | Film | 2011 In…
8 Tips For Protecting Your Lungs From Unhealthy Air
If you have a chronic lung condition, you’ll need to protect your lungs from being further irritated by unhealthy air. We’ve put together a list of ways to help protect your lungs against unhealthy air using information from the American Lung Association. Check the daily air pollutant forecasts. …
Fundraising is important to cystic fibrosis organizations like the U.K.’s Cystic Fibrosis Trust. The money helps support research into new therapies and possible cures, along with offering services to cystic fibrosis sufferers. There are many different types of fundraising events that appeal to the masses but some people want to really challenge…
A wristband has been designed to help doctors detect diseases like cystic fibrosis and diabetes. The wearable device has a mechanism that can determine the levels of sodium and chloride in a person’s sweat — two properties which, if elevated, can indicate cystic fibrosis. MORE: Four common misconceptions about cystic fibrosis According…
Seventeen-year-old Lily Royer was diagnosed with cystic fibrosis just before her first birthday. According to a report on CBS Denver, despite taking regular trips to Colorado’s Children’s Hospital for treatment and spending three hours each day doing necessary airway clearance, the Aspen, Colorado native was able to find time to design,…
3 Travel Considerations If You Have a Lung Disease
With the weather getting colder and the holidays around the corner, many of us are thinking about vacations and traveling. While traveling with a lung disease does require some careful consideration, having a lung disease doesn’t mean that you have to be confined to the house. The…
Cystic fibrosis care has seen such rapid advances that the average CF patient has likely seen a dramatic evolution in treatment strategies in their lifetime. Here are some of the biggest milestones that shaped modern-day CF treatments. (Dates are when these therapies and ideas were adopted. Many are no longer…
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