What’s It Like to Be a Tween With Cystic Fibrosis?

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by Wendy Henderson |

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In this video from Inova Health System, Jamie Gentille talks to 11-year-old cystic fibrosis patient, Sarah, about what it’s like to be a tween with a chronic illness and the daily challenges she faces.

Teen with CF gets to play on stage with country star Luke Bryan.

Sarah talks about the treatments she needs to help with breathing and airway clearance, what she needs to get through her hospital visits, how she handles her condition in school, how she told her friends about her CF, and what advice she would give to hospital staff on how to treat children and teenagers with cystic fibrosis.

Find out more about Rose Ostrowski, a sixth grader who is singing in shopping malls to raise awareness for CF.

Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.


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