A Powerful Account of What It Means to Have Cystic Fibrosis
In this raw and emotional video, shared in 2014, Morgan Grindstaff (a.k.a. Cystik1) tells us what it’s like to have cystic fibrosis, how the symptoms affect his everyday life and how he is subjected to well-meaning yet unsolicited advice from people who generally know nothing about the condition.
Cystik1 talks about what cystic fibrosis means to him, not the medical side of the disease, but the emotional toll it takes and how it affects him and other CFers on a personal level. The powerful piece talks about the negative and positive aspects of having cystic fibrosis–what he feels the disease has taken away from him, but also what it has shown him about the compassion of others.
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