6 Remarkable Things to Know About People Living With a Chronic Illness

Life is tough for people with a chronic illness, but through the pain and the fatigue and all the other symptoms and side effects, they show an extraordinary passion for life and try to achieve as much as possible. With help from themighty.com, we’ve compiled a list of eight remarkable things to know about people living with a chronic illness.

They possess a profound strength. 

Anyone who has a chronic illness must be able to manage their daily lives regardless of being in acute pain or feeling extreme fatigue. Many work, have families, run the home and some are even caregivers for others with chronic illnesses.

They don’t give up no matter how hard it gets, they dig deep and fight through each day.

They are empathic to the pain of others. 

Knowing what it’s like to live in constant pain, those with a chronic illness tend to have more empathy and understanding for others in similar situations. They’re often the first to lend a helping hand when needed.

They often suffer in silence. 

Acutely aware that others may not want to hear about their pain, many people with chronic illnesses will suffer their hardships quietly. They may miss social engagements because they are too ill to attend, but will downplay their non-attendance.

They become very good at pretending to be well and often don’t look ill. This may be because they have made an extra effort with their appearance to mask how they really feel, or they are managing their symptoms with medication so they can get through the day.

Here are six organizations doing remarkable work either in research or alongside patients and their families which you can help directly or bring awareness to.

They have a different take on life. 

When you’re faced with a chronic illness and possibly your own mortality, you tend to place importance on different things. They will jump at new opportunities, try not to put things off until tomorrow or sweat the small stuff, and enjoy the simple pleasures in life.

They may miss social events without warning. 

With a chronic illness, symptoms can come and go. Just because a person is feeling well one day doesn’t mean they’ll feel fine the next. The unpredictability of their disease will mean that they too are unpredictable. Don’t be disappointed if they don’t show up to your event—if they could be there, they would be.

They need your support and understanding. 

People with chronic illnesses have enough to deal with in life and they rely on family and friends to be able to understand their circumstances and support their needs. Offers of help are not expected but are certainly appreciated. Even just taking the time to ask how they’re feeling will let them know you’re there for them.

You’ll also need to understand that issues like depression, anger, frustration, and self-pity can all present themselves from time to time. Allowing people the time to work through these emotions is essential; be there to listen and offer unconditional love and support.

The symptoms of cystic fibrosis will vary from patient to patient, but there are commonalities in the way that CF affects the body. Learn more about them here.

Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

3 comments

  1. Cynthia Wiltshire says:

    I had left a long very important comment and when I was filling in the information below, it disappeared, which I am even more frustrated and heart broken because the information above the comment played a serious but a VERY important role in my past and still today!!! Can you please let me know if you have happened to have received it PLEASE???

  2. Cynthia Wiltshire says:

    It looks like you didn’t. I will try again a little later on today. But usually when I see write something from the heart, if I lose it and have to rewrite it, it NEVER come’s out again but I am certainly going to give it another shot because it needed to be said for sooooo many reasons and it may have been VERY helpful in my recovery from Trauma from birth to this very day!!! I just still can’t believe that it disappeared just as I was about to tap, post comment.

  3. Cynthia Wiltshire says:

    It looks like you didn’t. I will try again a little later on today. But usually when I see write some TGthing from the heart, if I lose it and have to rewrite it, it NEVER come’s out again but I am certainly going to give it another shot because it needed to be said for sooooo many reasons and it may have been VERY helpful in my recovery from Complex PTSD from birth to this very day!!! I am trouble trying to get my family doctor to understand why I feel like the way I do and how pain play’s an important role in my every day activitie’s and the problem of sleeping that also I have to deal with just to get out of bed and that if I do get to sleep, it is only just 3 to 4 hour’s a day if I am lucky. I also suffer from pain of Fibromyalgia flair up’s especially when I am stressed emotionally and physically and that it increases so much more pain when it is cold weather and I have to go outside, especially in the winter month’s and it is so strong that I cannot perform my daily activitie’s. Even my health care worker’s have absolutely no idea what I am/go through. And then there is the emotional aspect of having Cystic Fibrosis and mix that with my Complex PTSD that I had suffered while living in extremely abusive foster home’s. But I can’t seem to get ALL my caregiver’s to be on the same page. I also have no family what so ever in my life. The person who gave birth to me abandoned me in an apartment and the police found me almost a week later. They had to break down the door and found me almost all alone in a crib in total darkness!!! Anyway my life story get’s so, so much worse and way too long to tell it here. I am 50yr’s old and I have a 21 year old son also, who is my miracle baby. Like I said, I could go on and on but I am hoping the information contained in this newsletter will somehow register with all my caregiver’s!!! Thank you

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