Life with cystic fibrosis can be challenging, but it can also be extremely rewarding. Because cystic fibrosis patients shouldn’t meet each other face to face for fear of cross-infection, the online CF community is a close-knit group who all look out for each other and offer real support, guidance, and friendship.
Some of our favorite vloggers devote hours each week to helping their fellow CFers, whether it’s to impart important up-to-date information about the disease, or to simply make someone smile. We’re sharing seven of our favorite CFers for you to check out and start following, if you’re not already.
The Frey Life
Mary and Peter Frey are childhood sweethearts who first met through their local church. The couple vlog daily about Mary’s journey with cystic fibrosis, covering all aspects of the disease including the most recent addition to their family: their service dog Oliver.
Preparing to participate in 24 hours of hardcore physical training to raise money for cystic fibrosis charities in the U.K., Josh Llewellyn-Jones is a great example of what you can achieve if you set your mind (and body) to something.
Lauren’s YouTube channel, Gifted Life, focuses on some of the amusing aspects of living with cystic fibrosis and often enlists the help of her lovely mom for her hilarious videos. Her dark, Australian, sense of humor is a hit with everyone who lives with a chronic illness.