7 Inspirational CFers to Follow for #CFAwarenessMonth


Life with cystic fibrosis can be challenging, but it can also be extremely rewarding. Because cystic fibrosis patients shouldn’t meet each other face to face for fear of cross-infection, the online CF community is a close-knit group who all look out for each other and offer real support, guidance, and friendship.

Some of our favorite vloggers devote hours each week to helping their fellow CFers, whether it’s to impart important up-to-date information about the disease, or to simply make someone smile. We’re sharing seven of our favorite CFers for you to check out and start following, if you’re not already.

The Frey Life
Mary and Peter Frey are childhood sweethearts who first met through their local church. The couple vlog daily about Mary’s journey with cystic fibrosis, covering all aspects of the disease including the most recent addition to their family: their service dog Oliver.

MORE: The Frey Life share their journey with CF in a Facebook Live Video for Cystic Fibrosis News Today.

Josh Llewellyn-Jones 
Preparing to participate in 24 hours of hardcore physical training to raise money for cystic fibrosis charities in the U.K., Josh Llewellyn-Jones is a great example of what you can achieve if you set your mind (and body) to something.

MORE: Josh Llewellyn-Jones shares his fitness tips in a Facebook Live video for Cystic Fibrosis News Today.

Lauren Rowe
Lauren’s YouTube channel, Gifted Life, focuses on some of the amusing aspects of living with cystic fibrosis and often enlists the help of her lovely mom for her hilarious videos. Her dark, Australian, sense of humor is a hit with everyone who lives with a chronic illness.

MORE: Catch Lauren’s Facebook Live video for Cystic Fibrosis News Today where she answers questions about her double lung transplant and living with CF.

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?

Leave a Comment

Your email address will not be published. Required fields are marked *