Life with cystic fibrosis can be challenging, but it can also be extremely rewarding. Because cystic fibrosis patients shouldn’t meet each other face to face for fear of cross-infection, the online CF community is a close-knit group who all look out for each other and offer real support, guidance, and friendship.
Some of our favorite vloggers devote hours each week to helping their fellow CFers, whether it’s to impart important up-to-date information about the disease, or to simply make someone smile. We’re sharing seven of our favorite CFers for you to check out and start following, if you’re not already.
The Frey Life
Mary and Peter Frey are childhood sweethearts who first met through their local church. The couple vlog daily about Mary’s journey with cystic fibrosis, covering all aspects of the disease including the most recent addition to their family: their service dog Oliver.
Preparing to participate in 24 hours of hardcore physical training to raise money for cystic fibrosis charities in the U.K., Josh Llewellyn-Jones is a great example of what you can achieve if you set your mind (and body) to something.
Lauren’s YouTube channel, Gifted Life, focuses on some of the amusing aspects of living with cystic fibrosis and often enlists the help of her lovely mom for her hilarious videos. Her dark, Australian, sense of humor is a hit with everyone who lives with a chronic illness.
Son of famous NFL quarterback Norman “Boomer” Esiason, Gunnar and his friend, Julia Rae, record regular podcasts covering all aspects of living with cystic fibrosis from cross-infection risks to going to college.
Ben Mudge is another fitness vlogger who has cystic fibrosis. The body-building Irishman talks about living with cystic fibrosis and how he uses it as an inspiration to be as fit and strong as possible. Having already graced the cover of Men’s Fitness magazine, Ben is determined to forge a career as a fitness model.
Nathan Charles is an Australian professional rugby player. Rugby is a tough sport where physical prowess is a must, which is what makes Nathan’s story all the more incredible. Living with cystic fibrosis, Nathan shows that having the disease doesn’t have to be a barrier to realizing your dreams.
Twenty-year-old Claire’s YouTube channel The Clairity Project isn’t afraid to tackle the difficult subjects regarding cystic fibrosis. She has now formed her own non-profit organization Claire’s Place Foundation.
Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.