Beginning April 1 the Australian government will subsidize the cost of Trikafta (elexacaftor/tezacaftor/ivacaftor) for patients with cystic fibrosis (CF) under the Australian Pharmaceutical Benefits Scheme (PBS), dramatically reducing out-of-pocket expenses for eligible Australians. The subsidy was made possible by a reimbursement agreement reached between Trikafta’s developer, Vertex…
Levels of several metabolites were associated with inflammation and the presence of bacteria in the lower airways of people with cystic fibrosis (CF), which could be used as disease biomarkers, according to a recent study. “Our study was the first to both examine these metabolites in lower airway samples and…
The nonprofit Emily’s Entourage has awarded $440,000 in funding to support two projects aimed at advancing cystic fibrosis (CF) research. “These grants reflect Emily’s Entourage’s unwavering commitment to advance lifesaving research to fill critical unmet needs and expeditiously pursue promising therapeutic opportunities for the CF community, especially those that…
Cystic Fibrosis Canada’s 2020 annual data report from the Canadian Cystic Fibrosis Registry has been released, and it shows several improvements in the health of people with cystic fibrosis (CF), and a limited impact of the COVID-19 pandemic on health outcomes. “The Canadian Cystic Fibrosis Registry has…
The Canadian Institutes of Health Research (CIHR) has awarded CA$810,000 (about $637,000) over five years to researchers at the University of Saskatchewan (USask) to support their research exploring the role of two cell types in the lungs of patients with cystic fibrosis (CF). A better understanding…
Two types of bacteria — Porphyromonas pasteri and Prevotella nanceiensis — were found to be highly prevalent in the mucus of adults with cystic fibrosis (CF) and associated with a progressive decline in lung health, a study reported. These two bacteria differ from previously identified, disease-exacerbating bacteria in being…
A new tool has been developed to help people self-screen for symptoms of cystic fibrosis (CF), which may be particularly helpful for identifying the disease in nonwhites — namely in Black, Indigenous, and people of color (BIPOC), populations that are particularly vulnerable to delayed or incorrect diagnoses. Called the…
Poorer growth in childhood is associated with shorter height as adults in people with cystic fibrosis (CF) and does not appear to be linked with nutritional status, a recent study reported. Results of the study, “Most Short Children with Cystic Fibrosis Do Not Catch…
BiomX has been given up to $5 million to support a clinical trial of BX004, a phage therapy to fight Pseudomonas aeruginosa infections in people with cystic fibrosis (CF). Trial funding, awarded by the Cystic Fibrosis Foundation (CFF), marks one of several recent studies into phage therapy…
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