Patrícia Silva, PhD,  director of science content—

More and more people are turning to daring, extraordinary feats to call much-needed public attention to orphan diseases such as cystic fibrosis (CF), a debilitating and life-threatening hereditary condition that affects about 70,000 individuals throughout the world. A pair of brothers have recently committed themselves…

E. coli fluorescence Undergraduate students from the University of Dundee in Scotland are working on harnessing the power of laboratory-cultured, non-pathogenic E. coli to help cystic fibrosis patients fend off other harmful bacteria that could infect the lungs. Respiratory infections pose a serious threat to…

Dr. Stuart Elborn When it comes to formulating new and improved antibacterial treatments, scientists are in a race against the time it takes for today’s bacteria to mutate into more harmful, resistant strains. Even with today’s technology and advanced research practices, emerging pharmaceutical…

Leerink Partners, a specialty investment bank in the field of healthcare, recently extended an invitation to Insmed Incorporated, the biopharmaceutical company behind a highly promising liposomal amikacin formulation to treat Pseudomonas aeruginosa infections in patients with cystic fibrosis (CF), to participate in a Rare Disease…

One of the pressing concerns physicians have with patients diagnosed with cystic fibrosis (CF) is their increased susceptibility to respiratory infections along with greatly decreased lung clearance. A condition that manifests quite similarly to CF is primary ciliary dyskinesia (PCD), a hereditary condition that impairs lung…

Josh Brown Tommy Bahama, an island lifestyle brand under Oxford Industries, Inc. that markets casual, sporting, and swimming apparel and footwear, has teamed up with Josh Brown of the New York Giants of the National Football League (NFL) for a cystic fibrosis (CF) fundraising campaign. The…

Development-stage drug development company, Parion Sciences, just announced a generous donation from the Cystic Fibrosis Foundation Therapeutics (CFFT) organization worth $3 million. This funding will be allotted to further research on the company’s latest experimental product for cystic fibrosis (CF) — a genetic…

Jess Harrison is a 17-year-old cystic fibrosis (CF) patient who was diagnosed when she was only a baby at 18 months, like so many other patients. The difference is that she — as well as an increasing number of children and teens with the disease — decided to do…

Claire Wineland The inspiring story of a child’s tenacious battle with cystic fibrosis (CF) was the force behind the founding of a non-profit organization with a mission to give much-needed emotional and financial support to children diagnosed with CF and their loved ones. Claire Wineland, now 17 years…

For Irish couples, trying for a baby can be a source of anxiety because of their ethnic predisposition to a hereditary, debilitating disease of the mucous glands known as cystic fibrosis (CF). Statistics show that 1 out of every 19 Irish adults carries the gene for this condition, and…