Columns

Doctor appointments at a cystic fibrosis (CF) clinic are a normal part of my medical routine, but that doesn’t mean they aren’t anxiety-inducing. After being weighed and getting my oxygen saturation, temperature, and heart rate read like the back of a baseball card, I begin to psych myself up…

At the opening of Judeo-Christian Scriptures, the Creator lovingly forms humankind, then crafts and blesses the Sabbath, a sacred day set aside for rest. Rest filled humankind’s first full day. Before people were doing, they were being, and for this alone they were beloved. It’s the portrait of a…

When my daughter, Claire, was in the neonatal intensive care unit, I was lead counsel on a case that had made its way to federal court. I prepared for the case at Claire’s bedside between breaks of the nurses cycling in and PICC lines beeping around me. Somehow I…

“One Last Time” from the musical “Hamilton” is sung by the actor who portrays George Washington and sets Washington’s farewell address to music. It’s the perfect song for this breaking news: This is my final column. With that said, I can’t think of a stronger way to depart…

I’ve talked a lot about dreaming about the future, but not really about planning for it. Being born with cystic fibrosis (CF) made it challenging to depend on my health, so planning for the future never felt like a viable option. But now, more than five years after…

I’m a Make-A-Wish kid. Rather, I was one. I’m now 30, but I had my wish granted 12 years ago because of my cystic fibrosis (CF). For those unaware, the Make-A-Wish Foundation grants children with terminal illnesses and their families a once-in-a-lifetime opportunity to do whatever they like,…

“Go, go, go!” my nurse says while coaching me through my pulmonary function test (PFT). I’m pushing air into a mouthpiece that’s connected to a computer with a robotic arm that moves up and down to adjust for the height of the patient using it. My right hand grasps…

For years, the TV news program “60 Minutes” on CBS featured a frequent segment by broadcaster Andy Rooney. In it, Rooney would pontificate on the day’s important topics. Sometimes he’d come up with a solution to a particular problem, while other times he’d rant just to rant. But his purpose…

Recently, an expectant father reached out to me on social media after receiving a prenatal cystic fibrosis (CF) diagnosis. He told me that he was so grateful to our family for sharing our journey and giving other families hope. These types of messages are my favorite. The truth is,…

I resonate with springtime on a soul level. The hint of warmth in the air, the daffodil buds popping up, and the overall sense of renewal bring me such joy. Spring reminds me of my own rebirth I experienced after my double-lung transplant five years ago. With new lungs,…