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I hate the burden of feeling like a burden. I feel it all the time. I felt it last week when I went on a “bubble vacation” with two of my closest vaccinated friends. I felt it this week knowing I won’t be able to attend my cousin’s funeral.

Sometimes stress turns me into someone that I’m not. I’m never proud of knee-jerk reactions and am always looking to improve my coping skills. It’s a constant balancing act I haven’t mastered quite yet. Life with cystic fibrosis is stressful, and a double-lung transplant added another level of stress…

“Meeting Corey at 2 to walk in the park,” my mom texted me at 8:14 a.m. “Want to come? I know you don’t feel well,” she said, rounding it off, “but didn’t want to exclude you.” And that was how my mom began and ended the most perfect text in…

I am a creature of habit. So much so that it’s easy to forget that other chronic illness patients deal with their conditions in completely different ways. (Wait, we don’t all watch “Love Island UK” and cry until we need Liquid I.V. in our tea?) But recently, I decided to…

I can’t separate my physical malady from my mental diseases. Cystic fibrosis, depression, and anxiety are all linked, and they’re all separate. I think of my blend of comorbidities as a morbid sort of smoothie. I can tell what is going on whenever I don’t feel well, but a…

I talk about my life with a double-lung transplant regularly. Sharing the double-edged sword of transplant during National Donate Life Month may help others see how this life can be bittersweet. There are highs and lows and seasons of struggle and victory, each one powerful in its own way.

I am writing this from my bedroom — trapped. Like a character in a movie. Or Jim Gaffigan when he talks about being outnumbered. This is my SOS letter to you, The Column Reader, saying: “Send carrier pigeons. Send string cheese snacks. Send Supernanny. Send help.” I am…

I just had surgery again, and now more people will follow me. I don’t want to write about the surgery (again) because it’s the same one I had a few months ago. Even so, a few months from now, when I’m no longer bemoaning my moaning or showing…

Our vulnerabilities should be celebrated, but they seldom are in the workplace. Hiding our disabilities may feel like the only solution at times. After losing my previous job, I never thought I’d get another interview, let alone be hired again. It’s been five years since I’ve been active as…

This is what I need. I’m going to tell you instead of my doctors, because that’s the life of a chronic patient. Even though I will tell my team, and I adore them, their hands are tied, because I am not a whole person. Instead, I am chunks and pieces,…