Bad Clinic Visits: It’s Not Just the Numbers

No matter how good I feel, there’s always a sense of anxiety and uncertainty when I walk into a routine CF clinic visit. Thoughts swarm my head as my name is called to walk back into the office: What if my PFTs are down? What if my blood tests…

Five Tips for Flying with Cystic Fibrosis

Airports can be stressful. With the unpredictable delays, cancellations, and upsets of travel, it’s only natural to take some precautions before going on a business trip or vacation. However, preparing for travel becomes inherently more complicated when the traveler has a chronic illness like cystic fibrosis. I wish…

Keep an Eye on the ACA and Share Your CF Stories

By now, we’ve all heard that steps have been taken toward repealing the Affordable Care Act (ACA). Even within my network of friends and family, I’ve heard mixed responses. There are those who detest the ACA, those who believe it should be protected, and those who think it should be…

Featured Column

How I Discovered That PTSD Was Causing My Post-transplant Struggles

PTSD, mental health, communities, stress, grateful, work, trauma, rare disease day, transplant, CF community, National Blood Donor Month, birthdays, holidays
Columnist Lara Govendo addresses an issue that several readers may relate to: post-transplant PTSD, which can wreak havoc.

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