I have what some might call a bad habit. I can easily spend hours a day playing video games. My favorites are role-playing games that allow me to create my own character, down to the most minute details of their appearance and backstory. It’s common…
Columns
On some days, the motivation to pedal a stationary bike and feel the burn and breathlessness for 20 straight minutes is buried under a layer of mucus lining most of my airways. Pulmonary rehab five days a week has tuned my body so that I can dramatically feel the weakness…
My tattoos hold more stories than my scars. In a way, my tattoos are my scars — they’re just the ones I chose. After almost every major medical hurdle, I’ve decompressed through ink. It’s a way of choosing the needles that hurt me, instead of having them forced upon me.
Hi, my name is Brad Dell, and I have clinical anxiety disorder. Well, disorders. Three types. My generalized anxiety disorder is well-documented in my columns. It’s plagued me since sixth grade, beginning when I’d lie in bed at night, sweaty and staring at the glowy star stuck to my…
I recently wrote a post on social media about my health struggles. Having disappeared from the online world without explanation, I had come to terms with my feelings and felt ready to share. Part of my motivation for sharing what I had been…
Doctors receive training in particular specialties and, in some cases, subspecialties. But “specialties” and “subspecialties” can be described as a “broad array of diseases” and “broad array of fewer diseases.” I’m not trying to dismiss the expertise of medical professionals or reduce them to their skill sets. I’d never…
I share a lot online. I share medical ups and downs whenever possible. I share the audiogram roller coaster of going Deaf. I share the ebb and flow of motherhood. I share the stormy tides of body politics in a world that doesn’t take kindly to stomas and scars. It’s…
The cystic fibrosis community has access to three cystic fibrosis transmembrane conductance regulator (CFTR) modulators right now: Kalydeco (ivacaftor), Orkambi (lumacaftor/ivacaftor), and Symdeko (tezacaftor/ivacaftor). These CFTR modulators are each approved for specific mutations and age groups. If you’ve been following the progress in this area, you’ll be…
A common perception about those with disabilities is that when they find a job, they are so appreciative that they are the most dedicated, loyal employees in the building. A recurring theme in conversations that I’ve had about working with chronic illness is that those of us with…
Do You Feel What I Feel?
I am going to explain what it’s like being in this body. But before you read this, you need to know it’s not because I have a “woe is me!” attitude or want condolences or pity. I am lucky to have this body. This body is lucky to have me.
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Recent Posts
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- HIIT a safe and timesaving exercise option for adults with CF: Study