Like others with chronic illness, many of us with cystic fibrosis (CF) have met someone who has recommended something that would “cure” us of our disease. Someone once told me that some kind of tea would clear out all of my mucus and lung infection. While I appreciated their…
Understanding Nonsense - a Column by Willian Ryan
All symptoms aren’t created equal. They can be visible or invisible and range from manageable to unbearable, even debilitating a person for days on end. With cystic fibrosis (CF), symptoms can last a lifetime and affect far more than the lungs. Some even develop into separate diseases, creating…
It’s the coughing. It’s always going to be the coughing with cystic fibrosis (CF). It makes everyone uncomfortable, whether they admit it or not. Everyone who knows me knows I can have a pretty bad cough that can be loud, harsh, and drag on for a long time. It’s…
In my nearly 31 years of life, I’ve watched technology evolve at a rapid pace. Millennials like me have watched cellphones, video games, and computers transform from their rudimentary beginnings into the efficient tools we rely on today. As an adult with cystic fibrosis (CF), I’ve also seen dramatic…
At least twice a week, as I’m lying in bed, I can hear the voice of Paulie Walnuts from “The Sopranos” whispering one of his famous quotes in my ear: “A man needs his seven hours. Keeps his mind sharp.” Aside from the hilarity of that scene, Paulie…
Last weekend, my wife and I went to Manhattan to see comedian Alex Edelman perform his one-man show “Just for Us” on Broadway. The show revolves around how he initially sneaks into a white nationalist meeting as a joke (he’s Jewish), but comes out of it…
During the last month, the smoke from Canadian wildfires has made its way into a significant area of the United States, drastically affecting the ability of residents to breathe, particularly those with health conditions. As someone with cystic fibrosis (CF), I find it to be yet another…
As a former stand-up comedian, I’ve heard jokes about every topic under the sun, from Tinder to kitchen appliances, to every dark and demented aspect of human life. I’ve also made jokes about my battle with cystic fibrosis (CF), and I make no apologies for it. It was…
For years, it felt like Dad and I were polar opposites of each other, despite sharing the same first and last name and some of the same DNA. He’s always been an outgoing and boisterous person, ready to lead anybody into singing Frank Sinatra, coaching county-champion baseball and basketball teams,…
Living with a terminal illness such as cystic fibrosis (CF) can leave one asking questions like, “How would my life be different if my cystic fibrosis were cured?” Many of us would love to be cured of CF, but it’s difficult to approach the idea of what life would…
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