News

The Welsh Government is set to launch a year-long campaign, called “Time to Talk” that aims to ensure their employees are well-informed of the soon-to-be implemented shift to a soft opt-out system of organ donation, and what choices are available to them. Those who do not register will be considered…

The 26th edition of the Carleton Cup, an annual race dedicated to fundraising for the charitable organization Cystic Fibrosis Canada, is taking place this Saturday, January 24th at the largest skating rink in the world, the Rideau Canal, in Ottawa, Canada. Already dubbed as “The Ultimate Canadian Triathlon,” the event aims to join sports with…

A team of scientists of The University of Bath’s Department of Biology & Biochemistry in Bath, U.K. report that they’ve developed a new gene editing technique that they say will streamline biomedical research and in the future will potentially be harnessed to prevent genetic diseases like Cystic Fibrosis prior…

U.S. lawmakers recently introduced new legislation that could greatly benefit thousands of Americans suffering from cystic fibrosis (CF) and other rare diseases with largely unmet clinical needs by helping them gain access to and participate in clinical trials without having to worry about their health…

British parliament is currently debating the plans of England’s National Health Service (NHS) to transfer more healthcare management responsibilities from national specialized services to local commissioners. However, the debate is generating a major discussion in UK healthcare circles about the risks that could come from trusting the specialized care of chronic and…

International outsourcing services provider, CROMSOURCE, which works with pharmaceutical, biotech and medical device companies, is providing a series of training modules on the best practices for clinical research regarding specialized conditions, including cystic fibrosis (CF). The course is being organized by the Italian Cystic Fibrosis Society (SIFC) and is taking place until…

A recent study from Israel found that three or more patients with Cystic Fibrosis in one family may be a risk for more severe disease and poor prognosis. The study entitled “Several siblings with Cystic Fibrosis as a risk factor for poor outcome” was recently…

Peter Barry from the Manchester Adult Cystic Fibrosis Centre at the University Hospital of South Manchester and Alex Horsley from the Institute of Inflammation and Repair, Education and Research Centre at the University of Manchester recently reported the case of a 20-year-old man with CF. The report, entitled “…

Vertex Pharmaceuticals, Inc., a pharmaceutical company known for discovering, developing and commercializing novel medicines for serious diseases with largely unmet clinical needs such as cystic fibrosis (CF), recently revealed the company’s corporate outlook for the year 2015, prior to their scheduled presentation at the highly-anticipated 33rd J.P. Morgan Healthcare…

A new editorial entitled “Comparing cystic fibrosis outcomes across the pond” was recently published online in the journal Thorax. In the editorial, David C Taylor-Robinson from the Department of Public Health and Policy, at the University of Liverpool in the United Kingdom along with colleagues discuss…