News

CFNZ Holds Fundraising Fashion Show for Awareness Week

Advocates and fundraisers for Cystic Fibrosis continue to develop creative, unique ways to increase awareness of the disease throughout the world and support ongoing clinical research for effective, new therapeutic strategies. Recently, the Cystic Fibrosis Association of New Zealand (CFNZ) joined forces with Ballentynes Fashion Central to organize a fundraising fashion show…

MDL Provides New Prenatal Cystic Fibrosis Testing

A novel Cystic Fibrosis testing technology that features next-generation DNA sequencing platforms has been launched by Medical Diagnostic Laboratories, L.L.C. Certified by the Clinical Laboratory Improvement Amendments (CLIA) and accredited by the College of American Pathologists (CAP), MDL specializes in complex, state-of-the-art, automated DNA-based molecular analyses. The MDL Cystic Fibrosis Core Test is a CFTR gene sequence exam provided…

FDA Advisory Committee Gives Cystic Fibrosis Drug Kalydeco (ivacaftor) Thumbs-Up for Patients Six And Up With R117H Mutation

Vertex Pharmaceuticals Incorporated announced Tuesday that the U.S. Food and Drug Administration’s Pulmonary Allergy Drugs Advisory Committee (PADAC) voted 13-2 to recommend approval of Kalydeco (ivacaftor) in people with cystic fibrosis (CF) ages six and older who have the R117H mutation in the cystic fibrosis transmembrane regulatory (CFTR) gene,…

CF To Be Part of New Newborn Screening Requirements in PA

Governor Tom Corbett Every year, millions of babies in the U.S. undergo newborn screening to detect conditions that may gravely affect their health or survival in the long run. This effort is part of healthcare’s emphasis on early detection, accurate diagnoses, and prompt intervention in order to prevent juvenile…

NIH Awards $15.6 M to Support Parion Sciences’s CF Studies

The National Institutes of Health (NIH) recently awarded $15.6 million in grants to support research into mucolytic agents discovered by Parion Sciences, a company dedicated to creating novel therapies for pulmonary diseases, such as Cystic Fibrosis among others. The five-year grants were given to The University of North Carolina, Chapel Hill (UNC-CH) and…

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