Melissa Benoit receiving treatment, circa 1983 – Image Credit: The Hospital For Sick Children In the 1980’s, life expectancy for persons with CF was just 12 years in the US, and around 20 in Canada. Melissa Benoit spent the first month of her life in the neonatal…
News
Drug development companies such as NovaBiotics that are devoted to designing and developing treatments for patients with difficult-to-treat, medically unmet diseases are often faced with the hurdle of recruiting enough patients to conduct the clinical trials necessary to approve new treatments. Recently, the hindrance has…
Development-stage drug development company, Parion Sciences, just announced a generous donation from the Cystic Fibrosis Foundation Therapeutics (CFFT) organization worth $3 million. This funding will be allotted to further research on the company’s latest experimental product for cystic fibrosis (CF) — a genetic…
Jess Harrison is a 17-year-old cystic fibrosis (CF) patient who was diagnosed when she was only a baby at 18 months, like so many other patients. The difference is that she — as well as an increasing number of children and teens with the disease — decided to do…
Claire Wineland The inspiring story of a child’s tenacious battle with cystic fibrosis (CF) was the force behind the founding of a non-profit organization with a mission to give much-needed emotional and financial support to children diagnosed with CF and their loved ones. Claire Wineland, now 17 years…
Cystic fibrosis is among the numerous chronic conditions categorized as rare diseases. As many cystic fibrosis patients know, a unique set of burdens are placed upon themselves and their caregivers, and Atlantis Healthcare is working to bring light to patients’ hardships. Recently, Atlantis Healthcare released a white paper with…
Creative Electric (CE), a performance company in Scotland, is launching a fundraising effort to support a new project, a theatrical performance entitled, “HEY, I’M ALIVE!” that gives voice to a character who suffers from Cystic Fibrosis, according to a recent post on the North Edinburgh News (NEN) website.
For Irish couples, trying for a baby can be a source of anxiety because of their ethnic predisposition to a hereditary, debilitating disease of the mucous glands known as cystic fibrosis (CF). Statistics show that 1 out of every 19 Irish adults carries the gene for this condition, and…
Combining sporting events, socialization, and awareness campaigns has always been a great way to involve more people in supporting a cause. Whether it’s running a marathon, completing a workout, or doing cross-country biking, injecting an element of fun into supporting a serious disease has become…
One of the major concerns of cystic fibrosis (CF) patients worldwide is their dangerous predisposition to lung infections. Because of difficult to manage mucous build-up in their airways, incidences of viral and bacterial respiratory infections can become life-threatening — especially if it is an overgrowth of…
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