News

Increased Education Crucial to Improving Rare Disease Care, Survey Finds

Healthcare providers involved in diagnosing and treating rare diseases believe that increased physician education and collaboration with specialized facilities will have the greatest positive impact on treating these conditions over the next five years, according to results from a 2021 survey. Definitive Healthcare, a healthcare commercial intelligence company, conducted…

Bacteria Boosts Anti-fungal Medicine’s Killing Power in CF Study

Co-infection with the bacterium Pseudomonas aeruginosa can increase the potency of therapies that kill Candida albicans, an infectious fungus, according to a new study. The study, “Pseudomonas Synergizes with Fluconazole against Candida during Treatment of Polymicrobial Infection,” was published in Infection and Immunity. Pseduomonas and Candida are both microorganisms…

CFF ResearchCON on Tap Online in April With Latest CF Updates

Registration is open for this year’s ResearchCON, a free two-day online educational event that seeks to present the latest in cystic fibrosis (CF) research, science, and care in a way that’s accessible, engaging, and easy to understand. The Cystic Fibrosis Foundation (CFF) event will be held on…

Exercise, Like CF Services Moved Online With Pandemic: UK Survey

The COVID-19 pandemic markedly limited exercise training and related services provided at cystic fibrosis (CF) care centers in the U.K., but they largely continued through online offerings, a survey found. Most clinics adapted by expanding telehealth services to include online exercise classes, clinical monitoring, and consultations, responses showed, and many…

Flares, Poorer Lung Health Can Follow Becoming a Parent With CF

People with mild-to-moderate cystic fibrosis (CF) commonly experience a decline in lung function and an uptick in exacerbations shortly after becoming parents, a study reports. The use of CFTR modulator therapy can lessen the negative health impacts of newfound parenthood, findings also suggest. Its authors called for more research…