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Seventeen-year-old Lily Royer was diagnosed with cystic fibrosis just before her first birthday. According to a report on CBS Denver, despite taking regular trips to Colorado’s Children’s Hospital for treatment and spending three hours each day doing necessary airway clearance, the Aspen, Colorado native was able to find time to design,…

Hanging from the wall of Vertex Pharmaceutical’s Boston office is a massive set of sculpted lungs — pink and red, branching out with wide airways. The sculpture (made of foam, corrugated plastic, and glitter) is titled “I Want More Air!” As creators of game-changing CF drugs Kalydeco and…

With the weather getting colder and the holidays around the corner, many of us are thinking about vacations and traveling. While traveling with a lung disease does require some careful consideration, having a lung disease doesn’t mean that you have to be confined to the house. The…

Cystic fibrosis care has seen such rapid advances that the average CF patient has likely seen a dramatic evolution in treatment strategies in their lifetime. Here are some of the biggest milestones that shaped modern-day CF treatments. (Dates are when these therapies and ideas were adopted. Many are no longer…

According to the Cystic Fibrosis Foundation, there are seven major airway clearance techniques (ACTs) for patients with cystic fibrosis. Airway clearance is needed to help clear away mucus from the lungs to help prevent infections and to improve lung function. Children will need an adult to assist with ACTs, and…

According to the New York Times, “good decisions start with accurate information.” Here are four of the most common misconceptions non-patients have about cystic fibrosis. 1. Cystic fibrosis can be contagious. Some people are afraid they’ll catch cystic fibrosis if they are in contact with a patient, but it’s impossible.

Emily Lyons hasn’t stopped thinking about her sister Julia since she passed away from cystic fibrosis in 2011 — and she doesn’t want to. So, she created JWLS, a timepiece company with a set of lungs as its logo. Emily donates a portion of proceeds from watch sales…

We tend to take our lungs for granted, that is until we develop breathing difficulties. But even when living with a chronic lung disease, it’s important to look after these vital organs as best we can. The Rush University Medical Center has some useful advice to…

Adults with cystic fibrosis are like any other, most want to find the person of their dreams, settle down, get married and have children. But how does cystic fibrosis affect a man or woman’s ability to have children? We’ve compiled a list of facts about cystic fibrosis and fertility based…

https://www.facebook.com/CFNewsToday/videos/1375611545818786/ We first came across Josh Llewellyn-Jones when he started sharing details about his upcoming 24-hour fitness challenge to raise awareness of cystic fibrosis.  The 29-year-old, from Cardiff in the U.K., is a fitness fanatic who refuses to let his cystic fibrosis get in the way.