• paul-met-debbie

    Member
    October 28, 2020 at 10:52 am

    I wish you a good conversation.
    Perhaps you could post a small summary on the forum later, for those not on Instagram.

    I learned today that my CF center expects Kaftrio (this is how Trikafta is marketed in my area) to be be available in the Netherlands next summer. It has been approved for the EG, but now every country needs to negotiate a price that it is willing to pay for it to be covered in the national health-insurance system. So I still have some time to ponder whether or not to try it out.

  • jenny-livingston

    Member
    October 28, 2020 at 4:42 pm

    Paul, this is a great idea! Also, I believe that BioNews will be converting the IG interview into video content for YouTube and also an audio podcast. We can definitely share links to those things if/when that happens.

    And regarding your Trikafta/Kaftrio news… woohoo! I’m glad to hear that negotiations are underway. I completely understanding the pondering and deliberation that come with this opportunity. I wish you the very best in whatever you choose!

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