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Age appropriate CF responsibilities
At what age did you begin taking over CF responsibilities like preparing your own nebs, sterilizing neb cups, or administering your own treatments? What about making appointments, scheduling prescription refills, or dealing with insurance companies? Prior to adulthood, were you involved in all aspects of your CF care?
If you are a caregiver, what responsibilities does your child with CF oversee themselves? Do they know the names/purposes of their medications? Are they responsible for their own physio? When and how do you plan to transfer certain responsibilities into their hands?
I’d love to hear more about your experience regarding how and when responsibilities shift from the parent to the person with CF (if you can remember, that is — I actually can’t). What has your experience been?
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