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CF: A whole body disease
I frequently hear CF referred to as a lung disease. While I understand that for those who aren’t informed about CF, calling it this is a quick and easy way to describe it. But also, calling it this can be incredibly misleading. As we know, CF is a whole-body disease!
I have friends within the community who have never been hospitalized due to lung issues, but regularly have GI-related hospitalizations. Personally, my sinuses have been far more problematic in recent years than my lungs have been. CF is such an individualized disease and the ways in which it manifests itself are as unique as each of us living with it.
In what ways does CF affect your body? Do you have other organs that are affected more than your lungs? What symptoms do you have that differ from the “classic” explanation of CF?
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