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CF Teams: How Close Are You?
I had a Telehealth appointment with my CF team last week (I love them so!) and will have an in-person in a couple of months. I am so lucky that my team is so amazing and listens so well, and, funnily enough, my lead doctor shared how another patient had sent her something I had written! (Pure coincidence)
Before the pandemic, I was planning to invite my team to a dance show (although we never got the chance with everything shutting down) and I once sent them a video of our company-for-chronically-sick-dancers project that I was proud of at that time. I love the idea of having a team I can be close with, trust, and keep my life open towards… It gives us something to really fight and work for!
Question: How close are you with your CF team?
Have you ever invited them to personal triumphs like graduations or events? Do they know you outside of the hospital walls or do you prefer to keep those walls (metaphorically) up?
There are no wrong answers of course! Just curious how your current CF team dynamic feels for you.
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