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CFTR modulators and fatty foods
In order for them to be absorbed and work correctly, CFTR modulators need to be taken with fat. How much fat is up for debate. I was once told that 20 grams is ideal and for the first few years on Orkambi, I made sure I was getting that amount with each dose. More recently, a representative from Vertex told me that roughly 6 grams should be okay. Others have been told 12-16 grams by their healthcare providers or pharmacists. It seems that the answer varies depending on who’s asking/answering the question.
These days, I don’t aim for a specific amount, I just make sure that I am indeed getting some fat. I take my morning dose of Trikafta with breakfast and my evening dose with a night time snack, usually consisting of cheese, peanut butter, whole milk, or something along those lines.
Have you ever been told that you should be taking modulators with a specific amount of fat? If so, how much? What are your favorite modulator snacks?
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