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  • Posted by tre-larosa on May 29, 2019 at 10:50 pm

    In my opinion, one of the most under-discussed topics in the CF community is chronic pain.

    1. Have you struggled with chronic pain? Where was it localized?
    2. Did you feel like you were properly taken care of, or at least listened to?
    3. Do you feel like it’s appropriately discussed? Or should be more so? Less so?
    luisa-palazola replied 4 years, 9 months ago 3 Members · 2 Replies
  • 2 Replies
  • ziv-gudes

    Member
    June 30, 2019 at 6:18 am

    i didnt hear about it.. maybe at periods of antibiotics(IV) when the digestive system is affected by that…
    but not a chronic pain…

  • luisa-palazola

    Member
    July 1, 2019 at 3:43 pm

    I’ve never dealt with chronic pain. But, I have had arthritic flares pop up over time. From the CF community standpoint, I think we talk often about issues with chronic pain. But, and perhaps its because its not a big issue with me, I don’t know if its quite talked about in clinic

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