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This topic contains 2 replies, has 3 voices, and was last updated by  Luisa Palazola 4 months, 2 weeks ago.

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    Posts
  • #12705
     Tré LaRosa 
    Keymaster

    In my opinion, one of the most under-discussed topics in the CF community is chronic pain.

    1. Have you struggled with chronic pain? Where was it localized?
    2. Did you feel like you were properly taken care of, or at least listened to?
    3. Do you feel like it’s appropriately discussed? Or should be more so? Less so?
  • #12991
     Ziv gudes 
    Participant

    i didnt hear about it.. maybe at periods of antibiotics(IV) when the digestive system is affected by that…
    but not a chronic pain…

  • #12999
     Luisa Palazola 
    Keymaster

    I’ve never dealt with chronic pain. But, I have had arthritic flares pop up over time. From the CF community standpoint, I think we talk often about issues with chronic pain. But, and perhaps its because its not a big issue with me, I don’t know if its quite talked about in clinic

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