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Introductions

Mum of an awesome teen with CF

Posted by lizzy on January 12, 2019 at 11:22 am

Hi, I am Lizzy. I have 3 kids, and my eldest, Isaac, has CF. We had IVF and pre-implantation genetic diagnosis to conceive our daughters, ensuring that they do not. We live in the U.K.

Isaac has had a rough year, six courses of IVs, and a spell in PICU. He never complains though – I am in awe of him! I write a blog about us at https://mymerrymolyworld.blogspot.com

Is there a forum here specifically for parents?
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lizzy replied 5 years, 1 month ago 2 Members · 1 Reply
1 Reply

luisa-palazola

Member
January 12, 2019 at 1:33 pm

Hey Lizzy —

I’m Luisa and I am 25 and I have CF, like Issac. I just finished reading your latest blog, and am also in awe of him as well.

To answer your question — we do have a forum for Patients and Caregivers that we are in the works of developing a thriving discussion! I’ll link it here.

https://cysticfibrosisnewstoday.com/forums/forums/forum/a%E2%80%8B-%E2%80%8Bforum%E2%80%8B-%E2%80%8Bfor%E2%80%8B-%E2%80%8Bcystic-fibrosis-%E2%80%8Bparents%E2%80%8B-%E2%80%8Band%E2%80%8B-%E2%80%8Bcaregivers%E2%80%8B/
lizzy

Member
March 5, 2019 at 2:11 pm

Hi Luisa, the link you have given above for parents and caregivers does not work for me…. is this forum now open? Thanks!

http://mymerrymolyworld.blogspot.com

lizzy x

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