I am a person with cystic fibrosis, a writer, a patient advocate, and a scientist. I was diagnosed with CF at 18 months old and am now 27. I hold a degree in Biology from Virginia Commonwealth University and work part-time as an environmental microbiology lab manager. Over the last few years, I've become deeply involved in the CF community on advisory and research committees as well as serving as a director for the US Adult CF Association. I'm from Richmond, Virginia, but of Hungarian descent. I love the ocean, traveling, spending time outdoors, doing makeup, and eating my favorite dessert, crème brûlée. Follow my travel and life experiences on Instagram @thisgirlella.
Two weeks ago, I watched a livestream of the North American Cystic Fibrosis Conference (NACFC) as I popped Trikafta (elexacaftor/tezacaftor/ivacaftor) tablets out of their blister pack. Francis Collins, one of ... Read more
BreatheCon is a free online conference hosted by the Cystic Fibrosis Foundation (CFF) for CF patients 18 or older from across the globe to share life experiences, ideas, and encouragement. ... Read more
The day I was born, the median life expectancy of someone living with cystic fibrosis was 31. Although I haven’t reached that median yet, I feel like I’ve beaten ... Read more
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