I am a person with cystic fibrosis, a writer, a patient advocate, and a scientist. I was diagnosed with CF at 18 months old and am now 27. I hold a degree in Biology from Virginia Commonwealth University and work part-time as an environmental microbiology lab manager. Over the last few years, I've become deeply involved in the CF community on advisory and research committees as well as serving as a director for the US Adult CF Association. I'm from Richmond, Virginia, but of Hungarian descent. I love the ocean, traveling, spending time outdoors, doing makeup, and eating my favorite dessert, crème brûlée. Follow my travel and life experiences on Instagram @thisgirlella.
BreatheCon is a free online conference hosted by the Cystic Fibrosis Foundation (CFF) for CF patients 18 or older from across the globe to share life experiences, ideas, and encouragement. ... Read more
Having cystic fibrosis makes life sometimes stressful, sometimes lonely, sometimes painful, and oftentimes scary. But it can also make life seem more valuable, brighter, more optimistic, and more fun. Figuring out ... Read more
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