I am a person with cystic fibrosis, a writer, a patient advocate, and a scientist. I was diagnosed with CF at 18 months old and am now 27. I hold a degree in Biology from Virginia Commonwealth University and work part-time as an environmental microbiology lab manager. Over the last few years, I've become deeply involved in the CF community on advisory and research committees as well as serving as a director for the US Adult CF Association. I'm from Richmond, Virginia, but of Hungarian descent. I love the ocean, traveling, spending time outdoors, doing makeup, and eating my favorite dessert, crème brûlée. Follow my travel and life experiences on Instagram @thisgirlella.
We are currently experiencing something unlike anything we have seen before: a coronavirus pandemic whose magnitude is unprecedented in modern history. Two weekends ago, I was still celebrating St. ... Read more
Two weeks ago, I watched a livestream of the North American Cystic Fibrosis Conference (NACFC) as I popped Trikafta (elexacaftor/tezacaftor/ivacaftor) tablets out of their blister pack. Francis Collins, one of ... Read more
BreatheCon is a free online conference hosted by the Cystic Fibrosis Foundation (CFF) for CF patients 18 or older from across the globe to share life experiences, ideas, and encouragement. ... Read more