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April 27, 2021April 27, 2021

Coalition Calls for Clear COVID-19 Vaccination Policies

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People living with cystic fibrosis (CF) need clear, aggressive, and science-driven COVID-19 vaccine distribution strategies that prioritize their condition, says a coalition of experts. The Global Registry Harmonization Group (GRHG), ... Read more

April 26, 2021April 26, 2021

Lung Disease Evident in CF Patients in Study Despite ‘Normal’ Lung Function

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Signs of lung disease were evident in most cystic fibrosis (CF) patients with normal lung function in a small study, and related with a higher number of pulmonary exacerbations and longer ... Read more

April 23, 2021April 23, 2021

Resistance Training Favorably Affects Youngsters’ Heart Rate

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A clinical study found that in youth with cystic fibrosis (CF) who are in good physical condition, resistance training favorably regulates heart rate variability (HRV), an indicator of the ability ... Read more

April 22, 2021April 22, 2021

Study Will Assess How Diet, Exercise May Extend Lifespan

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People with cystic fibrosis (CF) generally are living longer and healthier lives than in the recent past. Now, researchers will conduct a five-year study to look into ways to further ... Read more

April 21, 2021April 21, 2021

KB407 In-human Trial Expected After Gene Therapy Found Safe in Animals

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Krystal Biotech is expecting to start a Phase 1 clinical trial by early fall to test KB407 for cystic fibrosis (CF), after the investigational inhaled gene therapy was found safe and ... Read more

April 20, 2021April 20, 2021

Levels of Neutrophil Elastase May Help Predict Disease Severity in CF

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Levels of neutrophil elastase, a pro-inflammatory enzyme normally released by immune cells known as neutrophils, plus a greater diversity and amount of microbes could drive disease severity in cystic fibrosis ... Read more

April 19, 2021April 19, 2021

Assessing Treatment Burden, Complexity May Improve Therapy Adherence

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Routine evaluations of how cystic fibrosis (CF) patients and their families are coping with the burden of therapeutic regimens — usually daily therapies that are complex and time-consuming — are ... Read more

April 16, 2021April 16, 2021

Bioengineer to Use $2M Grant to Study Gene Editing for CF

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A bioengineer at Rice University will use a more than $2 million federal grant for a project to “repair” harmful mutations that cause cystic fibrosis (CF) using a potentially more ... Read more

April 15, 2021April 15, 2021

Claire’s Place Foundation Launches Website to Connect CF Community

cystic fibrosis, News

To mark its 10th anniversary, Claire’s Place Foundation has launched a website that seeks to connect the community of people affected by cystic fibrosis (CF). “Our new website is a ... Read more

April 14, 2021April 14, 2021

‘Fun’ Sweat-measuring Sticker May Aid CF Diagnosis in Children

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A soft skin sticker that can rapidly measure chloride levels in sweat, which are elevated in cystic fibrosis (CF) patients, may help avoid delays in diagnosis and treatment associated with ... Read more