News

February 8, 2021February 8, 2021

CFRI’s ‘Embrace’ Virtual Retreat for Moms Set for Saturday, May 1

cystic fibrosis, News

An annual retreat for mothers of children of all ages with cystic fibrosis (CF) — virtual again this year — will take place on Saturday, May 1, giving these moms ... Read more

February 5, 2021February 5, 2021

Vitamin D in High Daily Doses Doesn’t Appear to Help – or Do Harm

cystic fibrosis, News

Higher doses of vitamin D supplements do not appear to lead to better clinical outcomes, either in lung function or bone health, in people with cystic fibrosis (CF), a systematic ... Read more

February 4, 2021February 4, 2021

Phage Therapy Clears Resistant Infection in CF Lung Transplant Patient

cystic fibrosis, News

For the first time, bacteriophage therapy treated a boy with chronic and antibiotic-resistant Achromobacter bacteria infection following a double lung transplant due to cystic fibrosis (CF), a case study reported. ... Read more

February 3, 2021February 3, 2021

Emerging Bacteria Species Shows Antibiotic Resistance, Patient Transmission

cystic fibrosis, News

The Achromobacter bacteria species that is an increasing source of chronic lung infections in people with cystic fibrosis (CF) shows evidence of patient-to-patient transmission and emerging antibiotic resistance, scientists in ... Read more

February 2, 2021February 2, 2021

CF Children May Take Enzyme Therapies on Own at Atlanta Hospital

cystic fibrosis, News

Hospitalized children and adolescents with cystic fibrosis (CF) who can take enzyme treatments for pancreatic insufficiency on their own, rather than waiting for them to be given by a nurse, ... Read more

February 1, 2021February 1, 2021

Trial of MS1819, Yeast-based EPI Treatment, Opens 2 Sites in Poland

cystic fibrosis, News

Two new sites for the extension of a Phase 2b trial testing an immediate release capsule form of MS1819 in treating exocrine pancreatic insufficiency in cystic fibrosis (CF) have opened in Poland and are enrolling ... Read more

January 29, 2021January 29, 2021

CF Foundation Grant Supports Testing of CSA-131 Against Resistant Bacteria

cystic fibrosis, News

The Cystic Fibrosis Foundation (CFF) has given Kinnear Pharmaceuticals up to $3 million to conduct the laboratory tests of CSA-131, a potential inhaled treatment of infections in people with cystic fibrosis ... Read more

January 28, 2021January 28, 2021

FDA to Review Trikafta for Patients as Young as 6

cystic fibrosis, News

The U.S. Food and Drug Administration (FDA) has accepted for review an application to expand the use of Trikafta as a treatment in children with cystic fibrosis (CF) ages 6 to 11 ... Read more

January 27, 2021January 27, 2021

Bronchoscopy Plus BAL Safe Way of Checking Lung Health of Patients

cystic fibrosis, News

Using bronchoscopy to examine the airways and the surrounding tissues of people with cystic fibrosis, coupled with the collecting of lung fluid through bronchoalveolar lavage (BAL), is safe and a reasonable ... Read more

January 26, 2021January 26, 2021

Pneumonia Seen as More Likely in CF Patients, Carriers of European Ancestry

cystic fibrosis, News

Cystic fibrosis (CF) patients and carriers — those with mutations in only one copy of the CFTR, the gene associated with CF — of European ancestry are at a higher risk ... Read more