News

AbbVie recently announced that the 2015 AbbVie CF Scholarship is now open and accepting applications from both graduate and undergraduate students. This scholarship supports and honors young adults suffering with cystic fibrosis (CF) in their pursuit of higher education. Students can apply for the scholarship until May 27, 2015, 10 a.m. (central…

Just Breathe: Adults living with Cystic Fibrosis is a newly released book that captures the human experience of Cystic Fibrosis through a series of simple, yet complex portraits of adults living with the disease. Readers will find themselves transfixed as each page brings a new face, challenging…

In a new study entitled “Ultrasound echo-intensity predicts severe pancreatic affection in cystic fibrosis patients,” the authors suggest ultrasonography is a suitable and effective diagnostic tool to evaluate pancreatic function in cystic fibrosis patients. The findings could help physicians better diagnose and treat the pancreatic issues and…

As a chronic disease that causes difficulties in breathing, persistent coughing, thick mucus and wheezing, most patients with cystic fibrosis (CF) struggle to manage the symptoms, often making exercise extremely difficult. 23 year-old Crystal Park, however, decided to take control of her body and the disease and, despite the difficulties,…

In a recent study published in the journal BioMedical Engineering OnLine, a research team from the University of Rio de Janeiro assessed the effectiveness of Forced Oscillation Technique for the evaluation of biomechanical lung function changes in patients with Cystic Fibrosis. With a mortality rate of 85%,…

Branching mini-lung. Credit: Nick Hannan, University of Cambridge The creation of a pair of mini-lungs was successfully completed by a group of investigators at the University of Cambridge and may revolutionize the treatment of conditions that affect the pulmonary system. The mini-lungs were created as part of a…

Vertex Pharmaceuticals Inc. recently presented preliminary study results of FDA-approved Kalydeco for the treatment of cystic fibrosis (CF) in combination with an investigational drug. Despite the fact that the combined therapy helped improve breathing in CF patients, the outcomes were less significant than expected by analysts, which disappointed investors. Vertex conducted…

When Julie Goodrow‘s first child was born in 2004, she never imagined that her life would be so different from other new mothers. Just one day after being born, the doctors told Julie that her daughter, Elena, now 11 years old, might suffer from a chronic and progressive disease, but it was…

Photo of the the Narberth Cystic Fibrosis Run The Narberth Cystic Fibrosis Run will celebrate its 20th year on April 25th, with proceeds to fund granting wishes to children suffering from CF and their families. To date, the Take A Breather…

Anthera Pharmaceuticals recently announced that it received a $3 million award from the Cystic Fibrosis Foundation Therapeutics to support both the manufacturing and clinical development of Sollpura™ (liprotamase), Anthera’s new pancreatic enzyme replacement therapy. Cystic Fibrosis Foundation Therapeutics is an affiliate of the Cystic Fibrosis Foundation, a non-profit organization. Anthera Pharmaceuticals is a…