News

Survival following lung transplant due to cystic fibrosis (CF) in children ages 10 and younger was similar to survival among older CF children with one key difference, a hospital study suggests. While recognizing and treating diabetes, infections, and other lung conditions early may prevent or slow lung disease progression,…

Registration is open for this year’s ResearchCON, a free two-day online educational event that seeks to present the latest in cystic fibrosis (CF) research, science, and care in a way that’s accessible, engaging, and easy to understand. The Cystic Fibrosis Foundation (CFF) event will be held on…

The COVID-19 pandemic markedly limited exercise training and related services provided at cystic fibrosis (CF) care centers in the U.K., but they largely continued through online offerings, a survey found. Most clinics adapted by expanding telehealth services to include online exercise classes, clinical monitoring, and consultations, responses showed, and many…

Women with cystic fibrosis (CF) who underwent a lung transplant are at higher risk of cervical dysplasia, or abnormal (precancerous) cells on the lower part of the uterus (cervix), a study reports. The risk increases among women who are not vaccinated against human papillomavirus (HPV), the main risk factor…

People with mild-to-moderate cystic fibrosis (CF) commonly experience a decline in lung function and an uptick in exacerbations shortly after becoming parents, a study reports. The use of CFTR modulator therapy can lessen the negative health impacts of newfound parenthood, findings also suggest. Its authors called for more research…

Telerehabilitation — the delivery of rehabilitation care from a distance using technology — may make children with cystic fibrosis (CF) feel less anxious or depressed, have a more positive body image, and also improve their ability to walk farther, a small study found. However, the levels of anxiety and…

Patient registries are a hot topic of rare disease research and many organizations are taking advantage of this resource by signing up their patient communities and connecting with researchers. Eric Sid, MD, program officer for the Office of Rare Diseases Research (ORDR), said it is difficult to estimate how…

American Airlines and its partners recently raised $1.2 million to support the Cystic Fibrosis Foundation during its 37th annual American Airlines Celebrity Ski event. In 37 years the event has raised more than $44 million supporting research to find a cure for CF. “For nearly 40 years, American Airlines…

The U.K. Cystic Fibrosis Trust has launched the CFTruths campaign, which is designed to enhance public awareness and understanding of cystic fibrosis (CF) and how patients routinely take precautions that now are associated mainly with preventing COVID-19. CFTruths comes on the heels of a YouGov poll organized by the Trust,…

Kalydeco (ivacaftor) therapy, given before age 1, was shown to normalize sweat chloride levels, and improve growth and lung and pancreas function in two baby boys with cystic fibrosis (CF), a case study reported. According to the researchers, these results show that Kalydeco “seems to be safe and…