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Do You Have CF+?
I’ve gone on a grand Complaining Tour this week on the forum for sure (“Be here all week!”), most of which has had to do with my rheumatic-style symptoms, and lazy attempts to connect the dots back to CF (or, in my case, atypical CF or CFTRD).
I am not going to be able to see a Rheumatologist until March – which is a bummer, to say the least- so I’m left waiting as most of us are familiar with doing. I think: “Would something rheumatological help answer why I’ve had some many nerve and joint issues with my back this year? Or is it just CF bone stuff?”
Or, as often feels the case with medicine, will I be left feeling sort of silly I wasted my time complaining and focus back on what we do know: CF.
Have any of you ever been diagnosed with something “on top of your CF” (or CF+, if you will)?
And, if so, who are your favorite doctors outside of your CF team? What about least favorite? (What doctor have you broken-up with the most over the years or had the hardest time finding and keeping?)
I am finishing out the week with this in a fun way tomorrow (trust me)… But for now, I look forward to learning your replies! (And taking notes)
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