31 Days of CF: Steven’s Story

Luisa Palazola avatar

by Luisa Palazola |

Share this article:

Share article via email

View this post on Instagram

Day 14 of 31 Days of CF ⁣ Topic: Working Full Time⁣ ⁣ In life expectations are placed upon us to achieve milestones, and in the life of a person with cystic fibrosis everyday can feel like a milestone. I did not grow up thinking there was anything I couldn’t do. Limitations were not a conversation my family and I ever had. Entering the workforce after four years of college was no different. I feel fortunate that this was the case for me because I know this is not everyone’s experience. Because of this understanding I choose to make volunteering a big part of my life as well. I also feel that because I am able I should and do give back. It is important not just to my local community but the CF community as well.⁣ ⁣ At the age of 30 I am working full time as a financial planner helping individuals and businesses to achieve their financial goals. I also serve on two non-profit boards, The Arc of Northern Virginia as a member of the finance and executive committees and The Falls Church Little League as the volunteer coordinator. Sports have been a huge part of my life so I also coach youth sports year round. I am also currently serving on the STRC Steering Committee for the Cystic Fibrosis Foundation. I have spoken at the FDA with CTTI and been asked to join patient advisory councils for Johns Hopkins and Vertex.⁣ ⁣ All these activities and being a full time husband, dog dad and person living with cystic fibrosis seems like a lot. What I wouldn’t give to have the time back that CF demands! Has cystic fibrosis gotten in the way of these activities; absolutely, will it stop me; never. I have had a PICC Line under a suit doing infusions during a meeting and running with my basketball team often ends in a coughing fit, yet I am motivated to carry on. The expectations I have set for myself are far too great to quit or slow down. I do push myself too hard at times and am always thankful for all the support in my life. As a financial planner it is important for me to be saving for my retirement, which I am, and hope to spend on the beach somewhere. There are many years of hard work ahead to get there and I embrace that and redefining a life with cystic fibrosis!

A post shared by CFNewsToday (@cfnewstoday) on

Featured Column

Don’t Overlook Emotional Wellness When Dealing With Chronic Illness

A banner for Lara's column, depicting a car on a road trip winding through a forest.
Living with a chronic illness can affect emotional wellness, writes columnist Lara Govendo, who offers up some ideas for managing both.

Read the Column

Your CF Community

Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.