Brad Dell,  —

Brad Dell is Deaf and was diagnosed with cystic fibrosis at 2 months old in 1993. He received a double-lung transplant from UC San Francisco in January 2017, then cochlear implants nine months later. He lives in Hawaii, where he was raised. Usually he’s traveling the world, chugging coffee, or devouring books. He also pastors Restoration Community Church and serves as the director of community content at BioNews, this site’s publisher.

Articles by Brad Dell

A Life Intimate with Death Is Not a Life Deprived of Beauty

I gaze through a frosted window on a mountaintop near Lake Tahoe. It’s a church youth group retreat. The students play in the snow, sledding and laughing. I’m sipping Earl Grey while scrawling notes into a journal — combined with snowfall, it’s a recipe for sentimentality. I glimpse…

My CF Symptoms Have Made Easy Bullying Targets

Editor’s note: This column discusses suicide. Sometimes, the day is raw, a knife grinding round and round and round in my gut. The day also almost feels like fiction; a thing I’d prefer to fade into my life annals among the other bad things, mere pen strokes that have long…

What Storm Drain Adventures Taught Me About CF Treatments

I have a story for you. In my teens, I often ditched CF treatments to explore storm drains beneath my Hawaii suburban neighborhood. When entering the concrete tunnels (maybe 15 feet in height and width), they’re so dark it feels like you’re stepping into nothing, a vortex. Many…

The Toon Trauma Triggers

It’s the happiest place in the world. Disneyland. I am afraid. Trembling, I slip deep down into the plastic seat molded into a massive seashell on wheels. The darkness of the man-made cavern is interrupted by a video on the ceiling that makes it feel like I…

The Powerless Car and the Powerful Dad

I parked outside a library, where I’d planned to work for the day, at 7 a.m. in freezing 40-degree weather (I was raised in Hawaii). The library wouldn’t open for four more hours, and I was too tired to drive elsewhere, so I turned on my car’s heater…

In Defense of ‘Five Feet Apart’ — Sort of

The cystic fibrosis community gets buzzing at the news of a successful Vertex trial or when a well-respected researcher even casually mentions the word “marijuana.” When a trailer for a fictional romance movie about cystic fibrosis was released, our community was more of an angry swarm than…

I’ve Allowed My Disease to Abuse My Energy

Well, it finally happened: Twenty-two months after my double-lung transplant, I finally got sick for the first time. I gotta say, with a suppressed immune system, illness isn’t so lovely. I saw the docs last Tuesday, and they ran a panel of tests. No…