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To Treat CF, Understand CF: A Talk with Novoclem Therapeutics

Perhaps one of the most exciting parts of being both a patient and a scientist with CF is seeing just how quickly the field is growing. And fortunately, you don’t need an “insider’s knowledge” to see the changes. The CFF Pipeline to a Cure ably captures the exciting eruption of companies…

Vertex Trial Results and the Importance of CFTR Therapeutic Diversity

The CF community was delivered great news the other week: Vertex’s tezacaftor/ivacaftor combination treatment significantly increased lung function (ppFEV1) in patients 12 years or older with certain mutations of the CFTR gene (cystic fibrosis transmembrane conductance regulator).F 508 For those who are new to, or not…

Bad Clinic Visits: It’s Not Just the Numbers

No matter how good I feel, there’s always a sense of anxiety and uncertainty when I walk into a routine CF clinic visit. Thoughts swarm my head as my name is called to walk back into the office: What if my PFTs are down? What if my blood tests…

Five Tips for Flying with Cystic Fibrosis

Airports can be stressful. With the unpredictable delays, cancellations, and upsets of travel, it’s only natural to take some precautions before going on a business trip or vacation. However, preparing for travel becomes inherently more complicated when the traveler has a chronic illness like cystic fibrosis. I wish…

Keep an Eye on the ACA and Share Your CF Stories

By now, we’ve all heard that steps have been taken toward repealing the Affordable Care Act (ACA). Even within my network of friends and family, I’ve heard mixed responses. There are those who detest the ACA, those who believe it should be protected, and those who think it should be…