The Cystic Fibrosis Foundation (CFF) has joined 70 other organizations in signing a letter opposing the latest version of the Right to Try Act, which the House passed recently. It would allow terminally ill Americans to try medicines that have passed Phase 1 of the U.S. Food and Drug Administration…
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The U.S. Food and Drug Administration has granted Fast Track Designation to Proteostasis Therapeutics’ triple combo treatment program for cystic fibrosis. The program includes the company’s amplifier, corrector, and potentiator of the CFTR gene — a combination designed to overcome the impact of the mutations that cause CF. The…
AbbVie has opened applications for its 2018-2019 academic-year scholarships for undergraduate and graduate students with cystic fibrosis. The program awards $3,000 to 40 students, based on their academic excellence, creativity and community service. The 40 winners can also compete for a $25,000 special award in two categories — Thriving Undergraduate…
Almost everyone with cystic fibrosis or pulmonary fibrosis would like to have a remote monitoring device that allows them to keep tabs on their lung function at home, online surveys of the two patient groups indicate. PMD Healthcare said it conducted the surveys to learn CF and PF patients’ views on lung…
AB569, Arch Biopartners’ treatment candidate for bacterial infections in patients with cystic fibrosis, chronic obstructive pulmonary disease (COPD), and other respiratory conditions, has received a U.S. patent. The U.S. Patent and Trademark Office issued patent 9,925,206 to the University of Cincinnati, which granted Arch Biopartners an…
GeneFo has put together an updated 2018 guide on treatment options for people with cystic fibrosis (CF) after recent developments again focused attention on the high price tag of some of these medications and the difficulties patients face in accessing them. The guide includes information on financial and clinical resources to…
The Boomer Esiason Foundation (BEF) recently received a $50,000 grant from the Investors Bank and the Investors Foundation in recognition of the nonprofit’s 25 years of dedicated service to the cystic fibrosis (CF) community. The grant highlights the positive partnership built by Investors Bank and former…
Facemasks are just as good as mouthpieces and noseclips for breathing test measurements in preschool-age children, a study found. Multiple breath washout (MBW), a test that uses this equipment, measures lung function, making it possible to detect early lung disease. The study, “Comparison of facemask and mouthpiece…
Many cystic fibrosis patients have long-term Staphylococcus aureus infections, with the bacteria’s resistance to antibiotics fluctuating over time, a study reports. Chronic and recurrent infection of the airways is the most severe consequence of cystic fibrosis. The most prevalent bacteria is Staphylococcus aureus. There are different types of it, however, and studies have…
Organoid technology has created hopes of improved, personalized treatment for cystic fibrosis, but has also posed challenges and generated doubts. Organoids are three-dimensional, engineered cell structures built from stem cells that mimic the architecture and function of human tissue. These mini-organs have the potential to improve our knowledge of disease-related…
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