News

Cystic Fibrosis Canada has launched a free e-learning module that provides a comprehensive overview of cystic fibrosis (CF) to anyone interested. The Sept. 12 announcement coincides with this year’s back-to-school season. The module contains information to help people understand this complex disease. It has an interactive format designed for both professional and…

Anthera Pharmaceuticals has enrolled half the patients it is seeking for a Phase 3 clinical trial of Sollpura (lipromatase) as treatment for a cystic fibrosis-related digestive disorder known as exocrine pancreatic insufficiency, or EPI. The company expects to release the key results of the RESULT trial in late 2017 or early…

GeneFo is offering a free online lecture on Sept. 27 about the therapeutic benefits of humor and laughter as strategies to manage disease symptoms in cystic fibrosis. The webinar will provide practical assistance for patients and caregivers on how to enjoy a good laugh, even when living with such a complex disease. Cystic…

The risk of cystic fibrosis patients with chronic Achromobacter infections dying or having to have a lung transplant is twice as high than in patients who don’t have the bacteria, a study indicates. Researchers published the study, titled “Clinical Outcomes Associated with Achromobacter Species Infection in Patients with…

Cystic Fibrosis Foundation Therapeutics has given Pulmatrix a grant to test the safety of PUR1900 as a treatment for allergic bronchopulmonary aspergillosis (ABPA) in cystic fibrosis and asthma patients. The grant will allow Pulmatrix to assess the safety of the anti-fungal drug this fall, paving the way for a Phase 1/1B trial in…

European researchers have identified a group of genes that behave as potential modifiers in cystic fibrosis (CF) patients with a F508del mutation in the CFTR gene — a discovery that may lead to new ways to treat the disease. Their study, “Transcriptomic profile of cystic fibrosis patients identifies type I…

Portland Book Review (PBR) has given four stars to a new book, “There Are No Alligators in Heaven!,”  that describes the hardships of a family   struggling with cystic fibrosis (CF). The book is centered around Jennifer Hale, who was diagnosed with CF at the age of 2 but lived to…

Chest X-rays commonly used to monitor cystic fibrosis (CF) patients expose these people to cumulative radiation, a known risk for cancer. A study by researchers in Britain, published in the journal BMJ Open, found that newer equipment lessened this exposure and risk but levels were still a concern, especially for young CF patients…

ProQR Therapeutics has finished a dose-escalating Phase 1b clinical trial evaluating the safety, stability and distribution throughout the body of its investigational therapy QR-010 in cystic fibrosis (CF) patients with a confirmed F508del CFTR gene mutation. Interim top-line results should be released by late September. A missing amino acid in the 508 position of the…

Air pollution increases the risk that young children with cystic fibrosis will develop the methicillin-resistant bacteria Staphylococcus aureus, or MRSA, a study reports. The research, “Air pollution exposure is associated with MRSA acquisition in young U.S. children with cystic fibrosis,” was published in the journal BMC Pulmonary Medicine.