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CF Clinic Update and Weird RBCs
I was replying to our dear Jenny here about her recent “in person” CF clinic visit, and it made me realize I hadn’t yet posted about mine! It was last week, so I was only a week and a few days out from neck surgery, but I documented pieces of it here in a little silly video.
All in all, it went really well (mostly in part to my amazing team). We talked about how worried we are about my weight loss (about 15 pounds in the last few months) and what my ideal would be, and then the contributing factors and how to fix them. Since finances are a big issue at the moment, we dialogued a lot about that (I honestly lose weight a lot when we have to cut corners on groceries, to be honest).
We did a throat culture since I couldn’t yet cough into a cup or do PFTs so soon after neck surgery, and labs, and other basic things. Almost everything came back grand, except for my red blood cell morphology that was abnormal and had lots of oddly shaped RBCs. I haven’t even emailed my team to check in on that, but my first assumption is: Maybe my liver is to blame? My liver levels go up and down all the time.
Has anyone ever had this RBC issue before?
If you notice something weird on your MyChart, do you follow up or wait for your team to say something?
I’m always more of a “wait and see” gal (perhaps because I’m also a “bury my head in the sand” gal?), but I never want to make a big deal out of something that isn’t big. Then again, I also find that whenever I ignore something and don’t ask about it… it sometimes rears it’s ugly head down the road?
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