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Should We Stop Saying “Miracle Drug”?
I was thinking about miracles and medical moments yesterday, and I know that “miracle drugs” are a big thing in the health-focused world.
We hear so much about miracle cures (whether ones on the market or on their way) and… Do you feel this vernacular is potentially harmful for those growing up and into the healthcare system? For example, do you feel it sets an unfair standard for how far a pill or pharmaceuticals can actually go? Or do you like the positive verbiage and optimism?
I definitely plan to write a column about this! Personally, I know a few of my friends have spoken about the side effects of Trikafta, for example, and how it’s impacting their mental health in the negative, and/or delivering other difficult aspects as compared to their peers. Obviously, the majority are thriving (not including the 10% who can’t take it, of course)… but are we focused to narrowly on those benefitting, and forgetting those that aren’t?
Obviously, we should celebrate all the miracles we can get, but does the term “miracle drug” make the outside world less understanding of the fact that CF is not yet cured? In the same way that those who’ve had a double lung transplant find their community forgetting they still have CF (so many seem to think a transplant is a “cure”, rather than replacing one disease management for another)… Are we accidentally misleading the public in the same regard?
I’d love to know your thoughts!
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