Author Archives: Bailey Vincent

To the Doctors Who Didn’t Listen

To the doctors who didn’t listen to me: You were wrong. I remember the time I arrived in the ER six years ago, a place I mostly refuse to go, and you said, “Go home. You have vertigo.” You were a female, which I thought would work in my favor.

Restoring Humanity to the Statistics of Illness

I am having trouble sleeping. Everywhere we look, it feels like the world is on fire (both figuratively and literally). And if it’s not in flames due to human negligence or greed, it’s certainly engulfed in political firefights. And the worst kind of political opinion is political opinion that isn’t…

I Am Not Your Sick Savior, and Here’s Why

If I die, will it make you better? This is the storyline that appears in almost every movie ever made about sickness. We know and love the tragic trope well, but how well we handle unwellness is most often captured by the Sick Savior Complex. No star-crossed sickness saga is…

Listening to Both Sides of the Mask Debate

“I want to take my mask off.” I said these words to my daughters two days ago in a Barnes & Noble bookstore, even though I have pontificated novels to the contrary since this novel virus hit. In a world besieged by terms like “anti-masker” and “pro-mask,” I can’t help…

Advance Directives, Legacy, and Worrying Myself Sick

“Do you have an advance directive?” This is something most of us with CF have been asked before. For someone with a chronic illness, this question becomes as familiar as answering my name in one giant run-on sentence — “Bailey-Anne-Vincent-September-17th-1986” — and knowing what’s coming next. My name and…

A New Way to Hurt: Are You ‘Healthist’?

“I’m worried about your health.” I have heard this more times than I can count. It’s normally a guise for criticism of how I’m eating, how I approached my pregnancies, or how I look. For a long time, I tried to appreciate the concern. That’s how we show love, right?…

The Painful Truth About Being a Sick Parent

Being a parent sucks sometimes. We talk about how we “don’t talk about this enough,” but then we sort of do through rose-colored glasses and funny and frustrated columns such as these. “How come you never write honestly about what it’s like to be a sick person raising kids?”…

Does Everyone With CF Have Body Dysmorphia?

I have gained weight. I’ve been trying to gain weight for years, kindly encouraged by my CF clinic. Many might find it odd that aiming for a mid- to upper-range BMI is a goal for the chronically ill, especially in a world rife with diet culture and diminutive proclivities. But…

Featured Column

How I Discovered That PTSD Was Causing My Post-transplant Struggles

PTSD, mental health, communities, stress, grateful, work, trauma, rare disease day, transplant, CF community, National Blood Donor Month, birthdays, holidays
Columnist Lara Govendo addresses an issue that several readers may relate to: post-transplant PTSD, which can wreak havoc.

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