Columns

When Will I Be ‘Sick Enough’ for a Transplant?

On some days, the motivation to pedal a stationary bike and feel the burn and breathlessness for 20 straight minutes is buried under a layer of mucus lining most of my airways. Pulmonary rehab five days a week has tuned my body so that I can dramatically feel the weakness…

Choosing Scars, One Tattoo at a Time

My tattoos hold more stories than my scars. In a way, my tattoos are my scars — they’re just the ones I chose. After almost every major medical hurdle, I’ve decompressed through ink. It’s a way of choosing the needles that hurt me, instead of having them forced upon me.

Clinical Anxiety of an Unexpected Type

Hi, my name is Brad Dell, and I have clinical anxiety disorder. Well, disorders. Three types. My generalized anxiety disorder is well-documented in my columns. It’s plagued me since sixth grade, beginning when I’d lie in bed at night, sweaty and staring at the glowy star stuck to my…

Our Relationships with Our Doctors Are Stronger When We Self-advocate

Doctors receive training in particular specialties and, in some cases, subspecialties. But “specialties” and “subspecialties” can be described as a “broad array of diseases” and “broad array of fewer diseases.” I’m not trying to dismiss the expertise of medical professionals or reduce them to their skill sets. I’d never…

Is There an Upper Limit to the Improvements That CFTR Modulators Can Provide?

The cystic fibrosis community has access to three cystic fibrosis transmembrane conductance regulator (CFTR) modulators right now: Kalydeco (ivacaftor), Orkambi (lumacaftor/ivacaftor), and Symdeko (tezacaftor/ivacaftor). These CFTR modulators are each approved for specific mutations and age groups. If you’ve been following the progress in this area, you’ll be…

Do You Feel What I Feel?

I am going to explain what it’s like being in this body. But before you read this, you need to know it’s not because I have a “woe is me!” attitude or want condolences or pity. I am lucky to have this body. This body is lucky to have me.

I Am Not a Morning Person

I want to start this off with the disclaimer that I have never been a morning person. I am a night owl with a coffee addiction and a second-shift job. However, there is much more to the story. Several months ago, I noticed myself starting to frequently use the phrase…