Columns

The Burden of Care in the Life of a CF Patient

A couple of months ago, I did back-of-the-envelope calculations on basic CF stats. Here’s what I asked: In a year, how much time do I spend doing treatments? How many pills do I take? As I wrote last week, the spectrum of CF presentation is about as…

Making Dreams Come True in Uncertain Times

Last week, I introduced this column to share my experiences while working with cystic fibrosis (CF): the highs, the lows, the mid-meeting IVs — those kinds of things. In this column, I want to focus on the future; specifically, the dreams that I have…

What Storm Drain Adventures Taught Me About CF Treatments

I have a story for you. In my teens, I often ditched CF treatments to explore storm drains beneath my Hawaii suburban neighborhood. When entering the concrete tunnels (maybe 15 feet in height and width), they’re so dark it feels like you’re stepping into nothing, a vortex. Many…

The Diverse Spectrum of Health Across the CF Community

If you’ve ever met more than one person with cystic fibrosis, it’s likely they had very different experiences than you. First, their approach likely will be different; chronic disease affects everyone differently mentally, so some are vocal and “embrace” it, while others are quieter and choose to consider it a…

My Search for Happier, Healthier Work

Hello there, and welcome to my column! This is a place to talk shop. Work. Jobs. Careers. Whichever term you prefer. In the not-too-distant past, I was a wide-eyed, coffee-swilling exec with a penchant for checked trousers. I worked in a trendy digital agency in London. (Trendy enough to have…