Columns

Cystic fibrosis requires a complex and time-consuming treatment plan beyond what many other chronic illnesses require. It’s important to identify the barriers to treatment adherence and find practical ways to address the issues. Forgetfulness We have all been there, the perplexing pause followed by the blank stare directed at the…

September 2016 Every bone, tooth, and vein in my body trembled. The oxygen cannula hugging my nostrils slipped on sweat. I sat at a cold table with my pre-transplant coordinator who’d subjected me to a presentation that vividly, gruesomely, described the lung transplant process.

This morning, I managed to forget my yoga mat. Twice. It was 8:43 a.m. by the time I had walked the dog, readied myself, gathered my belongings, and finally locked the front door. Three steps later: Oh, crap. Where’s my mat?…

Happy World Breastfeeding Week! That’s right, in this column we are talking about breasts and the wonderful thing they can do: feed tiny humans. I want to dive into the reasons to breastfeed and how cystic fibrosis plays a role in the choice of whether or not to breastfeed.

July 28, 1 p.m. We’re laughing. Some of us literally poured blood, sweat, and tears to be there laughing. Transplant recipients, like me. Others thought they’d never see their loved ones laugh again, much less years later. Caregivers. Others doubted they’d ever laugh again after they lost the…

With my son’s first birthday fast approaching, I have spent a lot of time thinking about how quickly this first year of parenthood has gone. I know this is the most basic parenthood thing you can say, but here I go: It. Went. Too. Quickly. It feels like we’ve just…

One year ago, I was six months post-lung transplant. I was still fumbling about, trying to sort out my new body and aspirations to help other CFers with my second chance at life. I didn’t know how to inspire others to strength if I could barely walk. I…

“Living On a Prayer” played as I pulled into an intersection. From the corner of my eye, I saw a car dart onto my street. A screech and a smash. T-boned, rammed into my driver door. Shrapnel-like glass blasted through the air, trimming a sliver of flesh from my…

Being in a relationship with someone who has CF can be tricky, whether as a co-worker, friend, partner, or family member. It can be hard to know exactly what to do to support them when you aren’t sure what they are going through. Following is a list of simple acts…

“It’s all come full circle,” I repeated, rather exhaustingly, about two dozen times over the past two weeks when visiting family in Florida. Exactly two years ago, my family learned we’d have to leave Hawaii, my home for 12 years, to get my lung transplant at the University…