Columns

What Healthy People Don’t Realize About the CF Life

A couple weeks ago, I wrote about misunderstandings within the CF community. But what about misunderstandings projected into the community from the outside? If you’re a non-CFer, keep these things in mind when interacting with someone who has the disease. You might not feel sick, but that…

I Once Feared Numbers, But Now I Love Them

I’ve gone through life afraid of numbers. Not just math, although I’m really terrible at that. Numbers like “37”: the life expectancy of someone with CF, a number that was even lower when I was growing up. Numbers like “4”: the amount of antibiotics needed to…

I Have Cystic Fibrosis and I Am Traumatized

I walk through a football stadium. I catch a whiff of the cotton candy and am smacked back to every procedure I’ve had, breathing in the stale cotton candy-scented anesthetic before I drift to nothingness. I am so overcome with fear that I feel like dropping to…

The Art of Slowing Down

In the three years that I’ve spent away at college, I’ve learned oodles of life-changing lessons that can only be taught by good ole Professor Experience. Freshman year, I learned that duct tape won’t keep twinkly lights on your walls, but will allow…

I Love My Post-Transplant Life

I won’t lie. The first two months after my double-lung transplant were rough. I wasn’t in much pain, but my body was struggling to adjust to the cornucopia of transplant drugs, and I experienced the torment of withdrawal from the powerful painkillers I was on. After those…

‘I’m Not Crazy’

You’re about to read something I wrote two years ago. I had been diagnosed with anxiety and depression not long before then. Both left me utterly crippled, and would continue to do so for several months, but what I struggled most with…