Columns

With Pulmonary Disease Comes Brain Fog, and It Sucks

Confession: I failed kindergarten. It was open house night and my teacher showed my parents a line of class self-portraits. There were probably some overly large heads and outlandish skin colors, but you’d be able to tell they were drawings of humans. Then my parents saw mine: a…

My Motherhood Journey: An Introduction to Modern CF Mama

Before the food-splattered kitchen floors, overly enthusiastic smiles, and nursery rhymes; before babbling “dadas” or “mamas” filled our living spaces; and before the arrival of my blond-haired, blue-eyed baby-treasure, there was just me. I am a college graduate sorority girl and an eternal optimist who is constantly sipping my glass-half-full…

Medication Side Effects: Necessary Evils

The CF community is no stranger to the fact that medications that we put into our bodies, especially the powerful ones, do not come without risks. However, they are necessary evils to battle cystic fibrosis. Lately, my battle with cystic fibrosis has been riddled with these powerful,…

26 Years and Counting with CF

The day I was born, the median life expectancy of someone living with cystic fibrosis was 31. Although I haven’t reached that median yet, I feel like I’ve beaten the odds. During past birthdays, my parents, brother, and I celebrated with cakes filled with raspberry layers and chocolate frosting. The…

Do I Have Trouble Planning for the Future?

Editor’s note: “Path Unknown” is a new CF News Today column written by Wendy Caroline each Monday. My clinic used to hand out questionnaires at check-ins to see how patients were doing. I always chuckled to myself when I came across the question, “Do you have trouble…

Cystic Fibrosis Didn’t Shatter Me — It Forged Bravery

Moonlight twinkled off Eagle Scouts’ accomplishment pins (earned for demonstrations of helpfulness, generosity, and loyalty) as they wound rope around my friend and me — tying it off with a knot perfect enough to merit yet another accomplishment pin. Sweaty pits and unbrushed teeth polluted lake air that…

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