Columns

My CF Cough Barges into Normal Experiences

Two Christmases ago, my husband gave me a gift certificate for a massage. This week, I finally scheduled my first massage and cashed in the expiring gift. The timing felt designed, as my body is aching from inflammation and lugging around a 10-month-old baby boy one-third my size. I even…

Nothing Like a Car Wreck to Ease Your Worrying (Seriously)

On July 2, 2016, I awoke from a nightmare with a wheeze. In the movies, people awaken from nightmares with a gasp. But gasping takes air. I’d been suffocating for days. Days of tripping through a horrific hallucination that may sound funny, but only if you didn’t live…

7 Things Your Partner with CF Probably Isn’t Telling You

Being in a committed, loving, long-term relationship is a distinctly intimate experience. It is the most intimate experience of humanhood many would argue. To see a person walking by and say to them, “Hey, you’re fairly OK-looking. Would you like to hold hands for forever and accrue…

On Headaches and Not Being Fixable

I’ve had headaches since I was 10. Debilitating, eye-crushing, every-bone-in-my-face-feels-like-it’s-been-smashed-with-a-baseball-bat headaches. Depending on what doctor you ask, they either can or cannot be classified as migraines. (Well, depending on what doctor you ask, there’s really no difference between headaches and migraines in the first…

Tidying Tips for Low-energy Days

We all have those days with CF when the coughing is nonstop and the energy has fizzled long before the clock sounds noon. Unfortunately, low-energy days don’t magically retract our responsibility to lend a hand around the house. Maybe you are a parent chasing chaotic babies and tripping over blocks…

Progression, Personality, and Perseverance

Cystic fibrosis has slowly, but surely, been creeping and nosing into parts of my life previously untouched. Just the other day I was watching a morning routine video on YouTube. All I could think was, “Wow. That looks like such a nice and productive morning. I should…