cystic fibrosis

March 27, 2020March 27, 2020

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

cystic fibrosis

The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because of the coronavirus disease COVID-19 pandemic. ... Read more

March 27, 2020March 27, 2020

Problems with CFTR Protein in Platelets Linked to Lung Inflammation, Injury

cystic fibrosis, News

Problems with the CFTR protein in platelets, blood cells essential to clotting, activated these cells, both driving lung inflammation and injury, and hindering the lungs’ ability to clear bacteria in ... Read more

March 26, 2020March 26, 2020

Cells Grown in Artificial Organs May Be Most Viable for Lung Disease Research

cystic fibrosis, News

Growing cells in artificial tracheas or lungs is a better approach to model native organs than cells cultured in spheroids or in a plastic filter, according to a study, ... Read more

March 25, 2020March 25, 2020

Pulmonary Artery Measurements Used to Identify Pulmonary Hypertension in CF Patients

cystic fibrosis, News

Pulmonary artery enlargement is linked to pulmonary hypertension (PH) and lower survival among patients with severe cystic fibrosis (CF), according to a recent review of patient records. The study ... Read more

March 24, 2020March 24, 2020

COVID-19 Emergency Fund Launched to Support Cystic Fibrosis Community

cystic fibrosis, News

The non-profit organization Claire’s Place Foundation has launched a donation-based COVID-19 Emergency Fund to support the cystic fibrosis (CF) community by raising funds to provide patients and their families ... Read more

March 23, 2020March 23, 2020

Azithromycin Slows Lung Function Decline in CF Patients with P. aeruginosa, Study Says

cystic fibrosis, News

Prolonged use of the antibiotic azithromycin resulted in a 37% slower rate of lung function decline in cystic fibrosis (CF) patients with persistent Pseudomonas aeruginosa infection over a three-year ... Read more

March 20, 2020March 20, 2020

Armata Receives Up to $5M From CF Foundation to Develop Phage Therapy AP-PA02

cystic fibrosis, News

The Cystic Fibrosis Foundation has awarded up to $5 million to Armata Pharmaceuticals to advance its potential treatment AP-PA02 — a phage therapy against multidrug-resistant Pseudomonas aeruginosa infections in cystic fibrosis ... Read more

March 19, 2020March 19, 2020

Student Project Aims to Make CF Physiotherapy a Game

cystic fibrosis, News

A video game aimed at encouraging young cystic fibrosis (CF) patients to do their breathing exercises is being tested at Great Ormond Street Hospital in London and other sites ... Read more

March 18, 2020March 18, 2020

West Virginia University Grad Student Assessing CF Teens’ Nutrition

cystic fibrosis, News

Kristine Durkin, a West Virginia University graduate student, is carrying out a study to assess whether teenagers with cystic fibrosis (CF) are meeting their nutritional requirements, and identify ways to ... Read more

March 17, 2020March 17, 2020

Canadians Lobby Government to Reassess Proposed Regulations Affecting Access to Trikafta

cystic fibrosis, News

Canadian patient advocates and leaders in the field of cystic fibrosis (CF) are meeting with Canadian government officials to lobby for changes to proposed regulatory reforms that are preventing ... Read more