cystic fibrosis

August 11, 2020August 11, 2020

Research May Explain Why Different CF Bacteria Infect at Certain Ages

cystic fibrosis, News

New research unveils why the bacteria Pseudomonas aeruginosa cause sustained infections in younger cystic fibrosis (CF) patients, while the bacteria Burkholderia cepacia complex infects patients as teenagers and adults. The findings show that ... Read more

August 10, 2020August 10, 2020

CF Foundation Invests $20M to Accelerate CF Programs in Partnership With Longwood Fund

cystic fibrosis, News

The Cystic Fibrosis Foundation has committed $20 million to support the development of innovative therapeutics and early-stage companies focusing on cystic fibrosis (CF). In collaboration with venture capital firm ... Read more

August 7, 2020August 7, 2020

Screening Finds Fewer Newborns in Ireland With CF Than Expected

cystic fibrosis, News

A national newborn screening (NBS) program in the Republic of Ireland suggests that the incidence of cystic fibrosis and CF carriers in the country is lower than previously estimated, a ... Read more

August 6, 2020August 6, 2020

ELX-02, Potential Therapy for CF Nonsense Mutations, Named Orphan Drug

cystic fibrosis

ELX-02, an investigational treatment of cystic fibrosis due to nonsense mutations, has been designated an orphan drug by the U.S. Food and Drug Administration (FDA). This designation is given to treatments with ... Read more

August 5, 2020August 5, 2020

Scottish Government and Vertex Strike Deal for Access to Kaftrio

cystic fibrosis, News

The Scottish Government and Vertex Pharmaceuticals have reached a deal to make Vertex’s Kaftrio (ivacaftor/tezacaftor/elexacaftor) available for people with cystic fibrosis (CF) once the medication receives its European license. This ... Read more

August 4, 2020August 7, 2020

Higher Prevalence of Oral Candida Fungus Found in CF Patients

cystic fibrosis, News

People with cystic fibrosis (CF) are more frequently infected with oral Candida fungus and carry a higher number of fungi than healthy individuals, a study has found. All fungal ... Read more

August 3, 2020August 3, 2020

Northern Ireland Reaches Deal With Vertex for Access to Kaftrio

cystic fibrosis, News

The government of Northern Ireland reached a deal with Vertex Pharmaceuticals to make Kaftrio (ivacaftor/tezacaftor/elexacaftor) available for cystic fibrosis (CF) patients, once the medication receives its European license. The ... Read more

July 31, 2020August 3, 2020

Real-world Impact of Trikafta Will Be Evaluated in RECOVER Study

cystic fibrosis, News

A new study will assess the real-world effects of Vertex Pharmaceutical‘s Trikafta, a triple combo of elexacaftor, tezacaftor, and ivacaftor approved by the U.S. Food and Drug Administration (FDA) for treating up to ... Read more

July 30, 2020July 30, 2020

Thread-based Wearable Device May Help Diagnose, Monitor CF and Other Conditions

cystic fibrosis, News

Researchers have developed the first thread-based flexible patch that can be sewn into clothing to monitor — in real time — several molecules in sweat, including chloride ions, which ... Read more

July 29, 2020July 31, 2020

CFF Impact Grants Go to 4 Online Programs Engaging Patients, Community

cystic fibrosis, News

This year’s Cystic Fibrosis Foundation (CFF) Impact Grants, which provide up to $10,000 in funding, will support and empower the cystic fibrosis (CF) community through four new virtual programs focused ... Read more