cystic fibrosis

September 10, 2019September 10, 2019

Drexel Study to Look at Tailored ‘Talk’ Therapy in Helping Ease Depression and Anxiety in CF Patients

cystic fibrosis, News

How well Acceptance and Commitment Therapy (ACT), or tailored “talk” therapy that can be delivered via telemedicine, helps people with cystic fibrosis (CF) cope with mental health issues will ... Read more

September 9, 2019September 9, 2019

Tarpon Cellars Uses Wine Sales to Help CF Foundation

cystic fibrosis, News

Through a new partnership with the Cystic Fibrosis Foundation (CFF), California-based winery Tarpon Cellars will donate $1 to the organization’s Georgia chapter for each bottle of wine sold. The funds ... Read more

September 6, 2019September 6, 2019

Amikacin Liposome Therapy Has Similar Efficacy as Tobramycin for P. aeruginosa, Study Shows

cystic fibrosis, News

Amikacin liposome inhalation suspension (ALIS) showed the same efficacy and similar safety profile as tobramycin inhalation solution (TIS) for the treatment of cystic fibrosis (CF) patients with Pseudomonas aeruginosa lung infection, a comparative clinical study ... Read more

September 5, 2019September 5, 2019

Claire’s Place Foundation Glow Ride Will Include Virtual Riders This Year

cystic fibrosis, News

Claire’s Place Foundation is preparing for its 5th Annual Glow Ride event to raise money to support families affected by cystic fibrosis. The 3.4 mile-long bike ride will take place ... Read more

September 4, 2019September 4, 2019

Blocking Specific Protein Complex May Treat Chronic P. aeruginosa Infections in CF, Study Suggests

cystic fibrosis, News

Blocking a pro-inflammatory protein complex, broadly known as the neutrophil inflammasome, represents a new way of treating chronic Pseudomonas aeruginosa infections in cystic fibrosis (CF) patients, a proof-of-concept study demonstrated. ... Read more

August 22, 2019August 22, 2019

Cellular Metabolism Defect May Cause Pseudomonas Lung Infections in CF Patients, Study Says

cystic fibrosis, News

A defect in cellular metabolism is the root cause for the high incidence of lung infections caused by the bacteria Pseudomonas aeruginosa in patients with cystic fibrosis (CF), a study ... Read more

August 21, 2019August 21, 2019

Trained Sniffer Dogs Can Detect Key CF Bacteria, Study Shows

cystic fibrosis, News

Trained sniffer dogs are able to detect Pseudomonas aeruginosa, the most common bacteria found in people with cystic fibrosis (CF), in liquid cultures even at very low concentrations, a ... Read more

August 20, 2019August 20, 2019

S. aureus Bacteria Seen to Lose Resistance to Antibiotics When Combined with Rhamnolipids

cystic fibrosis, News

Molecules used by a bacterial species against other microbes, called rhamnolipids, can bolster the ability of a standard antibiotic to penetrate treatment-resistant strains of Staphylococcus aureus by essentially making holes ... Read more

August 19, 2019August 19, 2019

Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

cystic fibrosis

Imagine living your whole life with a painful disease so rare that only 25 others worldwide have what you have. And that you’re one of just six such people ... Read more

August 19, 2019August 19, 2019

Kalydeco Offers Better Quality of Life, Eased CF Symptoms, Patients Report

cystic fibrosis, News

Cystic fibrosis (CF) patients treated with Kalydeco (ivacaftor) who have the G551D mutation reported better health-related quality of life (HRQoL) and symptom relief than those on standard treatment who carry ... Read more

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