cystic fibrosis

March 21, 2019March 21, 2019

New Method to Determine Best PERT Dose Shows Potential in Young CF Patients, Pilot Study Reports

cystic fibrosis, News

A new method to estimate the best dose of enzyme supplements for pancreatic enzyme replacement therapy (PERT) based on different meals shows promise in young patients with cystic fibrosis (CF), ... Read more

March 20, 2019March 20, 2019

Early Viral Infections in CF Infants Associated with Lung Inflammation, Bacterial Infections, Study Finds

cystic fibrosis

Early viral infections cause inflammation and bacterial infections in the lower airway of the lungs of infants with cystic fibrosis (CF), according to a study. The prospective study, “Early ... Read more

March 19, 2019March 19, 2019

Amphotericin Holds Promise as Treatment for All CF Patients, Preliminary Study Shows

cystic fibrosis, News

Amphotericin B, a widely used antifungal medication, may be a potential treatment to restore lung mucus properties, including its ability to fight infections, in people with cystic fibrosis (CF), ... Read more

March 18, 2019March 18, 2019

Virus Can Help Treat Pseudomonas aeruginosa in CF, Study Suggests

cystic fibrosis

A new study shows that bacteriophages, viruses that naturally infect bacteria, can be used to fight Pseudomonas aeruginosa, the most common bacteria found in cystic fibrosis (CF) patients. Using ... Read more

March 15, 2019March 15, 2019

Movie ‘Five Feet Apart’ Sparks Mixed Reactions Among Cystic Fibrosis Community

cystic fibrosis, News

Warning: Spoilers for the movie are contained in this story. Mention a rare disease milestone — and a new approach to treatment, a new medicine, or even a cure ... Read more

March 14, 2019March 14, 2019

Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

cystic fibrosis

Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will suffer deeply if Britain leaves the European Union (EU), as scheduled, at the end of ... Read more

March 13, 2019March 13, 2019

Lung Enzyme Cathepsin S is New Therapeutic Target for CF and COPD

cystic fibrosis, News

Blocking the enzyme cathepsin S can alleviate symptoms and reduce lung damage in cystic fibrosis (CF) and chronic obstructive pulmonary disease (COPD), according to multinational teams led by researchers at Queen’s ... Read more

March 12, 2019March 12, 2019

CF Patient Joshua Skampo Gearing Up for 4th Boston Marathon

cystic fibrosis, News

Like scores of runners everywhere, when Joshua Skampo gets home from work, he pulls on his running shoes and heads out into the dusk. But unlike most runners, Joshua ... Read more

March 11, 2019March 11, 2019

ContraFect Granted Up to $6.94M to Develop Novel Therapy Against ESKAPE Pathogens

cystic fibrosis, News

ContraFect will receive up to $6.94 million in funding from CARB-X to support the development of their proprietary therapeutic peptides — amurins — against antibiotic-resistant bacterial infections caused by gram-negative ESKAPE ... Read more

March 11, 2019March 11, 2019

Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

cystic fibrosis, News

With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn screening, to vaccinations, gene therapies and euthanasia. But rare diseases and the expensive therapies needed ... Read more

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