cystic fibrosis

February 24, 2020February 24, 2020

CF Yogi Offers Free Live-streamed Weekly Classes to Bolster Lung Health and Healing Energy

cystic fibrosis, News

To put it in yoga-speak, instant karma greeted the co-founders of CF Yogi — Myra Giaffoglione of Glenwood, Iowa, and Elaine Malik of Seattle — when they spoke for ... Read more

February 21, 2020February 21, 2020

Arrevus’s Oral Antibiotic ARV-1801 Receives FDA Orphan Drug Designation as CF Treatment

cystic fibrosis, News

The U.S. Food and Drug Administration (FDA) has granted its orphan drug designation to ARV-1801 (sodium fusidate tablets), a treatment developed by Arrevus for patients with cystic fibrosis (CF). ... Read more

February 20, 2020February 21, 2020

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

cystic fibrosis, News

An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and ... Read more

February 19, 2020February 20, 2020

Majority of Home Nebulizers Used by CF Children Contaminated with Microorganisms, Leading to Exacerbated Symptoms, Study Finds

cystic fibrosis, News

More than 70% of home nebulizers used by children with cystic fibrosis (CF) are contaminated with microorganisms, posing a serious potential health risk to patients and underscoring a significant ... Read more

February 18, 2020February 18, 2020

Synspira Therapeutics, CF Foundation Agree to Support Development of SNSP003 for Malabsorption Syndromes

cystic fibrosis, News

The Cystic Fibrosis Foundation has reached an agreement with Synspira Therapeutics to support the further development of SNSP003, an enzyme replacement therapy (ERT) designed to treat malabsorption syndromes, including those ... Read more

February 17, 2020February 17, 2020

Noninvasive XV Technology May Lead to Faster CF Diagnosis and Better Treatment

cystic fibrosis, News

A new non-invasive tool, called XV technology, allows professionals to visualize airflow in a living lungs and could help in the diagnosis, monitoring, and treatment of cystic fibrosis (CF) and other ... Read more

February 14, 2020February 14, 2020

Iron Deficiency Common Among CF Patients and Requires Routine Screening and Guidelines, Study Suggests

cystic fibrosis, News

Iron deficiency is common among adults with stable cystic fibrosis (CF) and is significantly associated with anemia, vitamin A deficiency, antacids use, and moderate to severe lung disease, a ... Read more

February 13, 2020February 13, 2020

Presence of Heme B in Sputum Linked to Worse Lung Function in CF Patients, Study Shows

cystic fibrosis, News

The presence of heme B — a component of red blood cells — in the lungs is linked to worse lung function in people with cystic fibrosis (CF). That ... Read more

February 11, 2020February 11, 2020

Orkambi Therapy Reduces Hepatic Steatosis in CF Patients, Study Shows

cystic fibrosis, News

People with cystic fibrosis (CF) who were treated with Orkambi (lumacaftor/ivacaftor) have significantly less accumulation of fat in the liver — a condition known as hepatic steatosis — which is ... Read more

February 10, 2020February 10, 2020

Higher Blood Levels of Tiny Molecule May Be Linked to How CF Affects Girls, Study Suggests

cystic fibrosis, News

Girls with cystic fibrosis (CF) under the age of six have higher levels of a tiny RNA molecule, miR-885-5p, in their blood compared with boys of the same age, ... Read more