Victorious - a Column by Brad Dell

hope, funeral, social, ableism, funeralBrad Dell is a Deaf 27-year-old with cystic fibrosis. He received a double-lung transplant from UC San Francisco in January 2017, then cochlear implants nine months later. He now lives in Hawaii, where he was raised. Usually he's traveling the world, chugging coffee, mentoring college students, or studying theology. Otherwise, he's working as the director of columns at BioNews, the publisher of CF News Today. (OK, he's still drinking coffee while he works.) He writes to undo the taboo surrounding lung transplantation. Catch him on Instagram at @coffee.cats_

Why Rare Disease Communities Must Stand United

“You need space at the table for five wheelchairs?”  The waitress’s eyes exploded from her skull, shocked to the degree I’d expect if I were to ask that she seat five grizzly bears. When making the reservation at the restaurant, I said…

Screwed Over Expectations, Pura Vida, and a New Normal

I was fully deaf, too weak to walk across my living room (I couldn’t reach my upstairs bedroom anymore), constantly coughing and vomiting, soaked in sweat and wheezing, too anxious to face friends, under my parents’ 24/7 supervision, without a job other than occasional editing for a local magazine,…

Here’s What It Feels Like to Have Cystic Fibrosis

There’s a rattle in my chest when I inhale. I sweat and dig my nails into my palm. I feel it, microseconds of dread and fear as the rattling gives way to something like the plugging and unplugging of suction cups in my airways. That quickly escalates into a “cough…

Why I Shout My Story

A dad at the church I attend came up to me and said his newborn daughter had been diagnosed with cystic fibrosis. He looked tired; his motivation for telling me was mostly to ensure that the situation wouldn’t be a cross-infection problem (it isn’t yet, due to…

The Scenes in ‘Five Feet Apart’ that Tore My Heart

Heard enough about “Five Feet Apart” yet? I know you’re begging to read just one more piece about it, right? I saw the movie about a week after its release and wasn’t planning to write about it. Certainly not about how ethically (and cinematically) good or bad the…

Don’t Distance Yourself from Your OG Carers

We sat in pristine sands shadowed by titanic sentries dubbed The Twelve Apostles. At the southern end of Australia, I assume they guard against Antarctic penguins, like how The Wall in “Game of Thrones” defended against White Walkers. Maybe an invasion of penguins wouldn’t be bad. “I…