Cystic Fibrosis Foundation Impact Grant deadline is April 5

Program awards up to $10K to individuals, nonprofits to benefit patients, families

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by Mary Chapman |

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Applications are being accepted for the Cystic Fibrosis Foundation‘s 2023 CFF Impact Grant program, which funds projects or programs to improve the lives of those with cystic fibrosis (CF) or their families.

“The best ideas come from personal experience, and no one knows the ins and outs of life with CF like the CF community,” the CFF states on a webpage about the grant program, which began in 2016.

The grants, which are for U.S. citizens or permanent residents and nonprofit groups, provide up to $10,000 for up to two years. The full application deadline is April 5 and awardees will be notified in May. July 1 is the earliest project start date. An informational webinar about the application process will be held on March 9, 3 p.m. EST.

From voice lessons to building respiratory strength and self-confidence, or virtual job training workshops, the grants seek to support efforts that help patients or their families thrive, despite CF.

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For 2023, the foundation is encouraging applications for innovative, online engagement programs for adolescent patients and their siblings. Applications should be submitted for a one-year period and will be evaluated by an external review panel. Awards may be renewed for a second year, depending on fund availability and the approval of the mandatory progress report.

Applicant projects must:

  • benefit a significant number of CF community members or an underserved segment.
  • include the active and ongoing involvement of patients or family members who will benefit from the program.
  • either be original or an ongoing project that has a quantifiable impact on the CF community. Program content need not focus directly on cystic fibrosis.
  • have a description that includes the processes and resources needed for implementation and dissemination.
  • not claim to give professional, medical, or clinical advice to patients.
  • not be dedicated to clinical or basic research. Grant funds are to be used exclusively for purchasing equipment, lobbying, or fundraising.
  • comply with all relevant policies and guidelines, including those regarding infection prevention and control.

The four recipients of the 2022 Impact Grants were:

  • Bright Beginnings, Brilliant Futures. An online resource for primary caregivers of newly diagnosed infants. The program also includes an online support community and a series of self-guided informational modules.
  • CF Master Class. An online program that features an educational video series for the parents and caregivers of children and young adults with cystic fibrosis. Topics include advocating for a loved one, raising multiple children with CF, and diversity and CF. The program is led by a mother of two daughters with CF.
  • STROLO University: Promoting Sexual and Reproductive Health for Men with CF.  A patient-led virtual support forum where men with the disease can share CF-related sexual and reproductive health experiences, define priorities for care and research, and create resources for patients and clinicians.
  • The Nourished Breath. A virtual, bimonthly journaling workshop for adults in the CF community.

Three 2021 Impact Grants were renewed. They are:

  • The DistrActors. A group of comedic actors who provide emotional support to children with CF.
  • Exercise Training for Teenagers with CF. A virtual program that helps teens with CF learn proper exercise techniques.
  • I Can Imagine. A program led by artist and CF patient Dylan Mortimer that looks to involve artists around the country to create visions of healthy cells to be placed on display at U.S. hospitals.

For more information on CFF Impact Grants, send an email to [email protected]

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