One year of treatment with Kaftrio (elexacaftor/tezacaftor/ivacaftor), branded Trikafta in the U.S., helped people with cystic fibrosis (CF) gain exercise capacity, particularly those who saw changes in weight and lung function, according to a study out of Denmark. While there was a significant increase in the highest amount…

An eight-week remote exercise program of moderate to high intensity increased leg muscle strength and reduced body fat in adults with cystic fibrosis (CF), a new study showed. While no differences were found in lung function and quality of life, the gains seen with the short-term duration of the exercise…

We all know that exercise plays an important role in physical and mental health. But as someone with cystic fibrosis (CF), I believe that exercise is as vital as the medicines I take. When I was young, my pediatric CF physician encouraged my mom to keep me active.

I am not an athlete by any means. But I recently signed up to participate in a hiking fundraiser for the Cystic Fibrosis Foundation. Normally, I participate in a yearly walking fundraiser, but I had to choose another event this year because of my work schedule. Among the options…

When I was pregnant, we learned that our unborn baby likely had cystic fibrosis (CF). I immediately fell into a deep depression. I didn’t talk to friends and family. I felt like no one could possibly understand what I was going through. I became agoraphobic, only leaving my house…

Efforts to promote physical activity in people with cystic fibrosis (CF) should be holistically integrated into routine care, rather than delivered as separate interventions. “The key message resulting from the current research is that the promotion of [physical activity] in this population would be most effective as part of…

Burnout. Everyone knows the feeling, especially patients and their advocates. My burnout stems from the ongoing pandemic and the harsh contrast between government mandates and doctor advice. It stems from the quantity and quality of advocacy that I choose to post on social media every day, an activity…

A new online exercise and yoga program for children and adolescents living with cystic fibrosis (CF) is in development by Beam and CF Yogi, and will launch — with no costs to youth — in August on Beam’s virtual well-being platform. The program, created with the Johns…

The COVID-19 pandemic markedly limited exercise training and related services provided at cystic fibrosis (CF) care centers in the U.K., but they largely continued through online offerings, a survey found. Most clinics adapted by expanding telehealth services to include online exercise classes, clinical monitoring, and consultations, responses showed, and many…

To continue to support the health of U.S. adults living with cystic fibrosis (CF), the online exercise, education, and well-being platform Beam has extended its collaboration with the Cystic Fibrosis Foundation (CFF) through June. The partnership offers patients free access to live and on-demand training and educational…